carlysteam.com

Carly has been was diagnosed with a genetic disorder, Neurofibromatosis 1, and developed innoperable brain tumors, bilateral optic gliomas to the chiasm. She has been on chemotherapy for 2 1/2 years and the tumors have remained stable.




COME VISIT CARLY'S NEW WEBSITE AT:
WWW.CARLYSTEAM.COM




Treatment So Far:
Surgery for her Port-A-Cath inserted in her chest for chemo/blood draws
Carboplatin/Vincristine 11 treatments(chemo)
Temodar 2 rounds(chemo)
Vinblastine weekly(chemo)
14 MRI's of the Brain and Orbits 2 of the Spine
2 Blood Transfusions
Foot/Leg braces -no longer needed!!
Countless Oncologists, Neurologist, Endocrinologist, Opthamoloigist and blood tests

Side effects from all of this have been anaphylactic shock from the Carboplatin, reversable nerve damage from the Vincristine, mild hair loss, low blood counts







We are grateful for the love, support and prayers from all of you. Please take a few minutes to sign our guestbook, it is a great source of encouragement for our family.
The Mckay Family,
Rob, Chris, Kyle, Kaitlyn Carter and Carly

Journal

Thursday, October 18, 2007 9:13 AM CDT

Just a quick update, Carly's tumors are stable! Her next MRI is in January, and with another stable report in January, we will spread the MRI's out to every 4 months for a year, then every 6 months, then yearly forever.

Thanks again for your continued prayer, support and friendship!

On another note about Carter. He participated in a program at school where they can submit artwork, film, etc with the theme "I can make a difference by..." and he made a film on his running for the NF marathon team for a cure for Carly to the song of Mellis Etheridge "run for life". We went to an awards ceremony last night because he was top 3 of his devision and found out he won to go onto the next level to compete against other schools in our district. If he advances from there, he will go on to state, etc. He said last night, "I really am making a difference, because now alot of people are going to see my video and learn about NF". I wish I could post the video on this site, it is really cute.

Also, Kaitlyn has gotten into the running thing since running for the NF Team now completing 2 half marathons. She runs for her school on the X Country team and each week continues to advance and shave minutes off of her finish time. She is great! Needless to say, I have now lost my running partner, too fast for me!

Thanks again, have a great weekend, Chris

Hospital Information:

Patient Room: Not An Inpatient At This Time

San Diego Children's Hospital
3020 Childrens Way
San Diego, CA 92123
858-966-5877

Links:

E-mail Author: christinemckay@gmail.com

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