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Baden's Webpage

Welcome to our Child Web Page. It has been provided to keep people updated about our Child.

Baden Thomas Klein was born on February 6, 2003. He has Wiskott Aldridge Syndrome and is a SCID (Severe Combined Immune Deficiency - commonly known as 'the boy in the bubble disease').

Within the first 2 months of his life, Baden had several illnesses including RSV, broncilitus, and pnuemonia. Doctors at The Grand River Hospital suspected something was wrong with Baden's immune system so he was transported to The Hospital For Sick Children in Toronto, Ontario. In May, the family learned that Baden had a very rare immune system disorder called The Wiskott Aldrich Syndrome (WAS). WAS effects 4 in a million boys, and is a genetic disorder that passes from mother to son. WAS causes recurrant infections, low platelets and a number of other problems. Left untreated, boys with WAS do not reach adulthood. The doctors at Sick Kids said that the only cure would be to do a bone marrow transplant.
In most cases of WAS the need for a bone marrow transplant becomes more urgent when the child is around 2 years of age. In June 2003, Baden got PCP (a deadly form of pneumonia). This made him a priority for bone marrow transplant, and he was put in the reverse isolation unit of The Hospital For Sick Children. We were told to expect a stay of 6 months at the hospital.
Baden's sister, Alison, was tested to see if she was a bone marrow match. She did not match. As doctors looked on the world bone marrow directory, they also decided to test Baden's 3 double cousins. Double cousins are the result of siblings marrying each other (Baden's mommy is married to her brother's brother in law!). Thankfully 2 of Baden's cousins, Lucy & Abigail, were a 100% match. The doctors decided to use the bone marrow of the oldest cousin 3 year old Lucy Mason. The bone marrow transplant was set for August 11, 2003. On August 7, 2003 Baden was very sick. The doctors did a cat scan and discovered that Baden's brain was bleeding. Because of his low platelets, they were reluctant to do a procedure that would relieve the excess fluid in his brain because it was too risky. As the day went on Baden got worse until he had a seizure and his heart stopped. A code blue was called through the hospital. Thankfully the doctor's were able to resusitate Baden and the procedure was done to relieve the fluid on his brain. Baden spent 5 days in the PICU. The doctors decided to change his chemotherapy protocol, and do the bone marrow transplant 3 days early. They hoped this extra time would give him an increased chance to survive. Doctor's said he had about a 70% chance to survive. The bone marrow transplant went well. Since the transplant Baden has had pnuemonia, RSV, PCP, Rota Virus and Graft versus Host Disease.


Journal

Sunday, June 27, 2010 4:35 PM CDT

Hello everyone,
Just a quick 'hello.' Thank you for checking in on us. Baden continues to do well. He is done grade 1 in 2 days. I can hardly believe how time is flying. He went to Sick Kids in May for all of his tests. The plan was to see immunology and respitory but he was sent to dermatology too because he has been having a rash and the doctor wanted to make sure that it wasn't Graft vs Host disease (it wasn't). I still haven't gotten the letter from the doctor with the blood results but I think it will be ok as we have not heard anything by phone.
We are getting an excellent opportunity to meet some other families with Wiskott Aldrich Syndrome in August. It is the 1st ever conference for families with WAS in Chicago. We are really looking forward to it.
Anyway, thanks for checking in on us, and please send your prayers to our friend Danielle who has leukemia and who had a bone marrow transplant on Wednesday.
Until next time,
Joanne.

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Hospital Information:

The Hospital for Sick Children
Toronto, Ontario
Grand River Hospital
Kitchener, Ontario

Links:

http://www.cisociety.com   Canadian Immunology Society
http://www.rmhtoronto.org   Toronto Ronald McDonald House
http://www.bloodservices.ca   Canadian Blood Services


 
 

E-mail Author: jfabklein@sympatico.ca

 
 

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Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.
 
 
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