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Welcome to Jakob's web page. This page has been created to update people about Jakob and Kabuki syndrome. I will update this page often. Please feel free to leave us a message or e-mail if you want to know more about Kabuki syndrome.
Journal
Wednesday, August 6, 2008 7:12 PM CDT okay we are at UNM. surgery was yesterday and a long difficult day for both of us it was. Jake is strong, he is hanging in there although feeling pretty groggy today. I am a bit tired after being super stressed yesterday,
I also heard that an old friend is quite ill......please keep shelia in your prayers tonight too.
thanks for stopping by. please sign the guestbook so we know you were here.
am trying to get a few photos out by tex mail so send me your number if you want one and I missed you
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