Hello everybody. I wasn't really going to update tonight because there isn't really alot going on. Anyway I was correcting one of the childrens link I have on Jackson's page and the second part of my journal update just disappeared. This makes me very angry! I already updated the other day and my past journal entry just disappeared. It did not even go to the past journal entries. Now folks this really makes me mad. It is not easy having to copy and paste everything on his page just to do a journal entry and then it just disappears. If it continues I will definitely contact caring bridge. I did not have this problem before they changed servers. Well anyway I just didn't want everybody to think I haven't been updating! Jackson is playing nintendo and me and Brandy are eating popcorn.(and of course I am griping to you guys about caringbridge.lol! Anyway everybody take care and thanks for dropping by.

HELLO EVERYONE, SORRY THE UPDATE WASN'T SOONER, BUT WE HAVE BEEN SPENDING MOST OF OUR TIME WITH DAD. HE LEFT AGAIN FOR THE OIL RIG THIS AFTERNOON. WE WERE VERY SAD TO SEE HIM GO. I HAVE FELT SO BAD THE LAST TWO WEEKS AND IT REALLY FELT GOOD TO HAVE HIM HERE AT HOME. WE HAVE NO IDEA HOW LONG HE WILL BE GONE.

ASIDE FROM THAT THERE ISN'T MUCH ELSE GOING ON. JACKSON IS THROUGH WITH HIS ANTIBIOTIC BUT HIS SINUSES ARE STILL BOTHERING HIM. HE IS ALREADY IN BED BUT WAS REALLY MISSING DADDY TONIGHT. TOMMORROW HE HAS SCHOOL SO AT LEAST THAT WILL TAKE HIS MIND OFF OF DAD FOR AWHILE. WELL THATS ABOUT IT FOR AN UPDATE. THANKS FOR CHECKING ON US.

Sunday, October 19, 2003 9:57 PM CDT

HELLO EVERYONE, SORRY THE UPDATE WASN'T SOONER, BUT WE HAVE BEEN SPENDING MOST OF OUR TIME WITH DAD. HE LEFT AGAIN FOR THE OIL RIG THIS AFTERNOON. WE WERE VERY SAD TO SEE HIM GO. I HAVE FELT SO BAD THE LAST TWO WEEKS AND IT REALLY FELT GOOD TO HAVE HIM HERE AT HOME. WE HAVE NO IDEA HOW LONG HE WILL BE GONE.

ASIDE FROM THAT THERE ISN'T MUCH ELSE GOING ON. JACKSON IS THROUGH WITH HIS ANTIBIOTIC BUT HIS SINUSES ARE STILL BOTHERING HIM. HE IS ALREADY IN BED BUT WAS REALLY MISSING DADDY TONIGHT. TOMMORROW HE HAS SCHOOL SO AT LEAST THAT WILL TAKE HIS MIND OFF OF DAD FOR AWHILE. WELL THATS ABOUT IT FOR AN UPDATE. THANKS FOR CHECKING ON US.

Monday, October 13, 2003 10:50 AM CDT

HELLO EVERYONE, I JUST WANTED TO DO A QUICK UPDATE TO LET PEOPLE KNOW THAT JACKSON HAS GOTTEN BETTER. ONCE AGAIN HE HAS OVERCOME(OR IS OVERCOMING) A SICKNESS.ACTUALLY BY SATURDAY HE WAS MUCH BETTER. NO FEVER OR NOTHING. FOR THE LAST 2 NIGHTS WE WERE ABLE TO SLEEP WITHOUT THE BI-PAP. THANKS FOR THE PRAYERS THEY HAVE WORKED AGAIN. MY DOCTOR CALLED ME ON SATURDAY AND DECIDED TO TAKE ME OFF THE STEROIDS I WAS ON. FRIDAY AND SATURDAY I WAS PLAGUED WITH THE MOST AWFUL MIGRAINES. THEN YESTERDAY I WAS SO DIZZY I COULDNT GET OUT OF BED. I WAS SO SCARED I DIDNT KNOW WHAT WAS WRONG WITH ME ALTHOUGH I DID DETERMINE THAT THE LORTAB FOR PAIN IS WHAT WAS CAUSING THE DIZZINESS. THE DOC SAID TO LET ALL OF THE STEROID OUT OF MY SYSTEM AND CALL HIM TODAY OR TOMMORROW TO TRY SOMETHING DIFFERENT. I DO NOT KNOW HOW ALL OF THESE LITTLE CHILDREN TAKE THESE STEROIDS FOR SO LONG. MY HEART GOES OUT TO THEM. ON A LIGHTER NOTE, DAD IS HOME AND WE ARE ENJOYING IT. WE DONT KNOW FOR HOW LONG THOUGH. THANKS SO MUCH FOR CHECKING ON US. AND I WOULD LIKE TO ESPECIALLY THANK THE SIMPLY ENCHANTING ANGELS INTERNET GROUP WHICH I BELONG TO. I HAVE NEVER SEEN SO MANY ANGELS SHOW SO MUCH SUPPORT. THANKS LADIES.


UPDATE... THURSDAY OCT. 16TH 11:00 PM

SORRY I HAVEN'T UPDATED BEFORE NOW, BUT I REALLY HAVEN'T FELT THE BEST. JACKSON IS DOING GREAT. THE TEACHER COMES TOMMORROW SO HE HAD TO GOT TO BED EARLY TONIGHT. AND YES HE WASN'T HAPPY ABOUT THAT. ANYWAY HE IS ALMOST FINISHED WITH HIS ANTIBIOTIC BUT HE HAS NO TRACE OF ANY SICKNESS LEFT. HOORAY!

AS FOR ME, I ALMOST FEEL NORMAL BUT I AM STILL HAVING EPISODES OF FEELING LIGHTHEADED. I AM REALLY NOT SURE WHAT THE PROBLEM IS UNLESS I MAY BE ANEMIC. I HAVE NEVER BEEN DIZZY BEFORE DUE TO BEING ANEMIC BUT I REMEMBER THE LAST TIME I WAS REALLY ANEMIC I CRAVED ICE. IT WAS THE STRANGEST THING. AND AFTER I STARTED ON IRON, THE CRAVING WENT AWAY. I AM GOING TO WAIT UNTIL NEXT WEEK TO HAVE IT SEEN ABOUT UNLESS SOMETHING ELSE HAPPENS. WELL THATS ABOUT IT FOR NOW. I JUST WANTED TO LET EVERYONE KNOW HOW JACKSON IS DOING.

Friday, October 10, 2003 8:04 PM CDT

HELLO EVERYONE I JUST WANTED TO LET YOU ALL KNOW WHAT IS GOING ON. JACKSON COUGHED ALL NIGHT UNTIL I FINALLY HAD TO PUT HIM ON THE BI-PAP. HE ALSO HAS CONTINUED TO RUN FEVER OFF AND ON. FINALLY I CALLED THE CLINIC AT 2 AND TOLD THEM WHAT WAS GOING ON AND THE DOCTOR CALLED ME BACK AND SAID THAT SHE WAS GOING TO CALL HIM IN AN ANTIBIOTIC AFTER ALL. SHE SAID THAT ALTHOUGH HIS STREP WAS NEGATIVE HE DID HAVE PUS ON HIS TONSILS. NOW TELL ME WHY THEY DIDN'T DO THIS YESTERDAY? HE HAS ALREADY HAD A DOSE TONIGHT SO PLEASE KEEP FINGERS CROSSED THAT IT WILL HELP AND NOT BE TOO LATE. AFTER SOME CONSIDERATION I HAVE DECIDE TO STOP TAKING THE STEROIDS I HAVE BEEN ON FOR THIS PLEURESY. IT IS MAKING MY BLOOD PRESSURE STAY UP CONTINUOUSLY AND MAKING ME FEEL AWFUL. AND THIS EVENING I HAVE FELT LIKE MY LEFT ARM IS GETTING WEAKER. I KNOW THAT STEROIDS CAN CAUSE MUSCLE WEAKNESS SO I DONT KNOW IF THAT IS WHAT IT IS OR NOT. I CAN HARDLY TYPE AT THE COMPUTER. SO NO MORE STEROIDS!
WE DID HAVE SOME GOOD NEWS TONIGHT. DAD IS ON HIS WAY HOME AS WE SPEAK. HE SHOULD BE IN AROUND 11. SO JACKSON IS ONE HAPPY LITTLE BOY. THANKS FOR CHECKING ON US.

Thursday, October 9, 2003 5:16 PM CDT

JUST WANTED TO DO A QUICK UPDATE ON JACKSON. WE HAD A DOCTOR'S APPT. AT 1 TODAY AND WE GOT BACK AROUND 4. THEY DID A RAPID STREP ON HIM AND IT CAME UP NEGATIVE(IT USUALLY DOES) IT IS THEIR OPININON THAT IT IS VIRAL AND THEY WANT TO SEE IF IT WILL FOLLOW ITS COURSE AND CLEAR UP WITHOUT AN ANTIBIOTIC. I AM NOT TOO HAPPY WHEN THEY TRY TO PLAY GOD WITH MY CHILD. I HAVE SEEN THEM DO THIS BEFORE AND HE WOULD END UP IN THE HOSPITAL REALLY SICK. PLEASE PRAY THAT THIS WILL NOT BE THE CASE THIS TIME. HE IS A LITTLE STRONGER NOW THAN HE WAS. THE FEVER IS PERSISITING OFF AND ON AND HE REALLY FEELS JUST YUCKY. PLEASE PRAY FOR MY LITTLE MAN TO GET BETTER ON HIS OWN.

AS FAR AS MY OWN HEALTH IS CONCERNED, TODAY I HAVE FELT REALLY BAD. CHEST AND BACK PAIN. AND I AM SURE THAT NOT GETTING SLEEP LAST NIGHT DID NOT HELP. PLEASE KEEP US IN YOUR PRAYERS AND ON A LIGHTER SIDE.... IT COULD BE WORSE.

Wednesday, October 8, 2003 10:16 PM CDT

HELLO EVERYONE. THIS WILL BE A SHORT UPDATE CUZ THERE IS ALOT GOING ON. I FEEL SO MUCH BETTER AFTER STARTING THE STEROIDS. HOORAY. I DID NOT LIKE FEELING THAT BAD. I HAVE ONLY HAD TO TAKE ONE PAIN PILL TODAY SO THAT IS GOOD. JACKSON ON THE OTHER HAND IS A DIFFERENT STORY. HE STARTED RUNNING A LOW GRADE TEMP THIS MORNING AND HAS GONE UP TO 102.9. HE HAS NO OTHER SYMPTOMS AND I CAN'T FIGURE OUT WHAT IS WRONG. HE DID HAVE HIS FLU VACCINE YESTERDAY SO I DON'T KNOW IF THIS IS A SIDE EFFECT OR NOT. SHE JUST LOOKED AT HIS EARS YEASTERDAY, ALTHOUGH I KNOW AN EAR INFECTION CAN INDEED POP UP OVERNIGHT. FINALLY AFTER 3 DOSES OF MOTRIN OR TYLENOL IT IS TRYING TO GO DOWN, IT IS NOW 102 EXACTLY. I AM VERY NERVOUS CUZ I DON'T KNOW WHATS WRONG. PLEASE KEEP HIM IN YOUR PRAYERS THAT THE FEVER WILL BREAK AND GO AWAY. IN THE EVENT WE DO GO TO THE HOSPITAL, I WILL TRY TO MAKE SURE MY DAUGHTER KEEPS EVERYONE UPDATED.

Monday, October 6, 2003 10:44 PM CDT

HELLO EVERYONE, I AM SORRY FOR NOT UPDATING SOONER, BUT I HAVE BEEN FEELING A LITTLE UNDER THE WEATHER. ON THURSDAY AFTERNOON I STARTING HAVIN SEVERE CHEST PAIN. BY 1AM FRIDAY MORNING I KNEW THAT I NEEDED TO GO TO THE ER. THEY DID AN EKG, X RAY AND BLOOD WORK AND SAID IT WASN'T MY HEART BUT REALLY DIDNT KNOW WHAT IT WAS. THEY GUESSED IT MAY BE AN ULCER SO THEY GAVE ME 2 MEDS FOR ULCERS. THE PAIN CONTINUED OFF AND ON. AND FINALLY TODAY IN TEARS I WENT TO SEE MY FAMILY DOC. HE DID ANOTHER EKG(TO REASSURE ME) AND SAID HE WAS 99URE I HAVE PLEURESY( AND INFLAMMATION IN THE CHEST WALL AREA AROUND THE LUNGS) WELL HE STARTED ME ON STEORIDS AND GAVE ME PAIN MEDS. SO HOPEFULLY I WILL FEEL BETTER IN ABOUT 2 DAYS. I HAVE CHECKED ON SOME OF THE CARINGBRIDGE KIDS DURING THIS TIME, BUT HAVENT BEEN ABLE TO STAY ON FOR LONG CUZ OF THE PAIN.

NEEDLESS TO SAY POOR JACKSON HAS BEEN SO WORRIED ABOUT ME. HE TOLD ME TODAY THAT HE THOUGHT I WAS GOING TO DIE. POOR BABY. I REASSURED HIM THAT I HOPE TO BE NORMAL REALLY SOON. WE DID MANAGE TO GET HIS TANK SET UP SO HE IS HAPPY ABOUT THAT. TODAY HIS SINUSES HAVE BEEN GIVING HIM FITS. BT AT LEAST TOMMORROW HE GOES FOR HIS YEARLY PHYSICAL SO WE HAVE LOTS TO TALK TO THE DOC ABOUT. THANKS EVERYONE WHO TAKES THE TIME TO VISIT AND CHECK ON US.

Monday, September 29, 2003 10:19 PM CDT

Hello everyone. Hope everybody had an alright weekend. Miss Cathie came on saturday to get Murphy. Her, Sam and Ben spent most of the day with us and we had a great time. Especially Jackson. It is so nice to see him play with other children sometimes. He has almost no interaction with any kids other than his cousins. He now says he has 2 best friends. Miss Cathie brought him a 10 gallon aquarium and we are going to set it up tommorrow. Cathie is such a special lady. And the best parent pal I could ever hope for. Thanks Cathie for being there.

Today he had school and seemed to have some problems focusing on the tasks that he needed to.Thank goodness he has a supportive teacher. His physical therapist came this afternoon andhe did some exercises and showed her how good he is riding his bike now. the weather has cooled off and it is really feeling like autumn. I love it other than the fact that my Raynauds Syndrome starts getting worse. Well we only have one more month and then I can finally see that rheumatologist. Jackson and my allergies have been messing up too because the goldenrods are starting to bloom. Its amazing how that pretty of a plant can cause that much trouble. Anyway, we go on Thursday to do a port flush. Lucky me.

Jackson's sister, Brandy is feeling so much better since her car accident. I finally let her go off with her boyfriend tonight to a movie. It was hard to let her go after what happened, but I don't want to be a worrier everytime she leaves the house now. And she does need to get out of the house too. She can only take so much of her little brother.LOL! Well that is about it... Don't forget he will be a featured child on Wednesday on the Makeachild Smile website. Thanks for checking on us.


UPDATE... OCTOBER 1ST 10:13 PM

HELLO . WELL IT IS KINDA HARD TO BELEIVE THAT OCTOBER IS ALREADY HERE. AND THE WEATHER HERE HAS BEEN COOLING OFF SO IT IS REALLY FEELING LIKE AUTUMN. THE PECANS ARE FALLING IN THE BACK YARD TOO, AND I REALLY NEED TO PICK THEM UP. I JUST DON'T SEEM TO HAVE ALOT OF ENERGY THOUGH. TODAY WE FINALLY SET THE FISH TANK UP AND JACKSON JUST CAN'T WAIT UNTIL WE GET THE FISH. HE DOESN'T QUITE UNDERSTAND WHAT IT MEANS FOR THE WATER TO CYCLE.(NOT SURE I DO EITHER) AND SINCE WE HAVE WELL WATER, WE HAVE NOTHING IN THE WATER ANYWAY. ANYWAY, JACKSON WILL GO TOMMORROW FOR HIS PORT FLUSH.I HAVEN'T REMINDED HIM ABOUT IT YET. I DON'T KNOW IF I WANT TO WAIT UNTIL TOMMORROW OR NOT. HE ALWAYS GETS SO UPSET BY IT ALL.

WE ARE PLANNING ON GOING TO THE HAUNTED CORN MAZE AGAIN THIS YEAR SINCE WE HAD A BLAST LAST YEAR. AT LEAST THIS YEAR WE KNOW TO TAKE A FLASHLIGHT. HE IS GETTING REAL EXCITED ABOUT GOING. WE ARE GOING TO TRY AND WAIT ON DADDY TO COME HOME BEFORE WE GO. DAD SAYS IT WILL STILL BE OCT17 BEFORE HE COMES HOME.

JACKSON'S SISTER IS REALLY DOING ALOT BETTER. SHE IS COUNTING THE DAYS UNTIL THE 13TH. THAT IS WHEN SHE WILL GO FROM THE BIG CAST TO THE LITTLE CAST. THE BIG ONE IS DRIVING HER CRAZY. WELL I GUESS THATS ABOUT IT. THANKS FOR CHECKING ON US.

Friday, September 26, 2003 11:22 PM CDT

Hello everyone. I figured it was about time for an update. Jackson's sister is finally recovering somewhat from the car accident. Although yesterday she developed a killer headache that stayed with her all afternoon. It came and went in the evening. I got up every 2 hours to check on her last night. She has felt better today so I don't know why she ahd the headache or what the cause of it was. Of course I worry especially since she did receive some head trauma.

Tommorrow, Miss Cathie will be here to pick up Murphy. Jackson is a little sad but he hasn't been able to get around Murphy anyway since we found out about his allergy to Murphy. Poor Jackson is so depressed I just can't stand it. His health is doing okay I guess. he seems to be out of breath more these last few days but nothing really serious. he has broke out in some sort of rash like the one i have been having. I have it all over my body right now and stress seeems to make it worse. Jackson has some on his back and around his neck. I am gonna call clinic on Monday unless it gets even worse. Dad has at least been calling everynight so at least Jackson is getting to talk to him. Dad did say that he didn't think he would be home until about the 17th of October. Not good news at all. Well thats about it, thanks for checking in on us.

Sunday, September 21, 2003 11:17 PM CDT

HELLO ALL I JUST WANTED TO DO A REAL QUICK UPDATE. AS SOME OF YOU MAY HEARD FROM HUGSANDHOPE CHAT, MY 17 YEAR OLD DAUGHTER WAS IN A SERIOUS CAR ACCIDENT LAST NIGHT. SHE WAS THROWN FROM THE VEHICLE AS IT WAS TRAVELING THE 55 MILE PER HOUR SPEED LIMIT. WE ARE VERY LUCKY THAT SHE IS HERE WITH US. SHE HAS CONTUSIONS AND ABRASIONS EVERYWHERE, IN 2 PLACES IT LOOKS AS THOUGH 2 OR 3 LAYERS OF SKIN CAME OFF. SHE ALSO HAS AN ABRASION ON THE TOP OF HER HEAD AND A BROKEN WRIST. I GOT THE DREADED CALL AT 1AM THIS MORNING. WE DID NOT LEAVE THE HOSPITAL UNTIL 6:30 COMING HOME. SHE IS IN ALOT OF PAIN WHEN SHE IS NOT ON THE PAIN MEDS. PLEASE KEEP HER IN PRAYER FOR A COMPLETE RECOVERY.

JACKSON WAS WITH US IN THE ER ALL NIGHT TOO. HE DID MANAGE TO SLEEP A LITTLE IN MY LAP. HE HAS BEEN SO UPSET ABOUT THIS WHOLE THING BECAUSE HIS SISTER IS HIS ONLY PLAYMATE(EVEN IF SHE IS 17) AND HE HAS GONE AROUND ACTING LIKE A MOTHER HEN. YOU ALWAYS WANT TO PROTECT OUR KIDS FROM EVERYTHING, BUT LAST NIGHT I WAS AGAIN REMINDED HOW LITTLE CONTROL OVER OUR CHILDENS DESTINY THAT WE HAVE. HUG YOUR CHILDREN TONIGHT AND BE SO GLAD THAT THEY ARE SAFE.


SEPTEMBER 23..11:00 P.M.

HELLO EVERYONE JUST A QUICK UPDATE. MY DAUGHTER IS STILL TRYING TO RECOVER FROM THE AUTOMOBILE ACCIDENT. SHE HAS BEEN IN ALOT OF PAIN. YESTERDAY WE WENT TO HAVE HER CAST PUT ON. SHE HAS TO WEAR THIS ONE FOR 3 WEEKS AND THEN THEY WILL PUT ON ANOTHER ONE FOR ANOTHER 3 WEEKS. ALL IN ALL WE ARE VERY LUCKY. JACKSON IS STILL PLAYING THE MOTHER HEN. HE IS SO DEPRESSED RIGHT NOW. DAD CALLED TONIGHT AND SAID HE MAY BE OUT ON THE OIL RIG FOR ANOTHER 2 OR 3 WEEKS. POOR JACKSON I JUST DON'T KNOW WHAT TO DO FOR HIM TO MAKE THINGS EASIER. I STILL HAVE NOT TALKED TO HIS PEDIATRICIAN ABOUT WHETHER OR NOT I WANT TO PUT HIM ON THAT ANTIDEPRESSANT THAT THE NEUROLOGIST RECOMMENDED. OH WELL... HE HAS FINISHED ALL OF HIS ANTIBIOTIC AND NO LONGER HAS A SORE THROAT. GOOD NEWS FOR SURE...

Thursday, September 18, 2003 10:47 PM CDT

HELLO EVERYBODY, SORRY IT HAS BEEN AWHILE ON THE UPDATE, BUT THERE REALLY HASN'T BEEN ALOT OF PEOPLE COMING BY TO CHECK ON US SO I REALLY DIDN'T THINK IT WAS TOO IMPORTANT. JACKSON HAS FINALLY STARTED TO GET OVER BEING SICK. HE STARTED FEELING BETTER AND THEN KINDA STARTED GETTING SICK AGAIN. WITH ALL OF MY PRAYERS I GUESS GOD WAS LISTENING TO ME.

DAD CAME BACK IN TOWN ON MONDAY EVENING AND HAD TO LEAVE BACK OUT LAST NIGHT FOR AT LEAST 2 WEEKS. JACKSON WAS OF COURSE UPSET, AS WE ALL WERE. 3 DAYS IS JUST NOT LONG ENOUGH FOR JACKSON TO HAVE DAD. AND THEN IF THINGS HAVEN'T BEEN BAD ENOUGH, WE HAVE FOUND OUT THAT JACKSON IS HIGHLY ALLERGIC TO HIS NEW DOG, MURPHY. DOES LIFE SUCK OR WHAT? MISS CATHIE IS COMING NEXT WEEK TO PICK HIM UP.

SO AFTER EVERYTHING THAT HAS BEEN GOING ON JACKSON IS VERY DEPRESSED. I SEE HIM MOPE AROUND HERE WITH NO FRIENDS CUZ THERE IS NO SCHOOL. NO SPORTS CUZ HE IS TOO WEAK. IT BREAKS MY HEART TO SEE HIM SUFFER SO. WHAT IS A MOM TO DO? ANYWAY I KNOW EVERYONE DOESN'T WANT TO HEAR ALL OF THAT SO I WILL END ON THAT NOTE. WE DO HAVE TO ATTEND HIS 6 MONTH CHECKUP WITH HIS NEUROLOGIST AND I MAY UPDATE AGAIN SOON.


SEPTEMBER 20 9:57 P.M....HELLO EVERYONE JUST WANTED TO UPDATE ON OUR CLINIC VISIT YESTEREDAY. IT WAS A LONG VISIT TO SAY THE LEAST. FROM 9:30 TO 1:00 JACKSON WAS HAVING A COW. ANYWAY HE IS STILL HOLDING HIS WEIGHT AT 62 POUNDS EVEN WITH THE SMALL REDUCTION IN THE PEDIASURE. FOR THE NEXT 3 DAYS I HAVE TO KEEP A FOOD DIARY SO THEY CAN SEE ABOUT HOW MANY CALORIES HE ACTUALLY TAKES IN. OUR GOAL IS TO SEE IF WE CAN CUT BACK ON THE AMOUNT OF MILK HE GETS CONTINUOS AT NIGHT AND STILL MAINTAIN WEIGHT. HOPE THEY ARE MESSING THINGS UP. I REALLY DONT WANT TO SEE HIM START LOSING WEIGHT, BUT AT THE SAME TIME IT WOULD BE NICE TO BE RID OF THAT FEEDING PUMP. THE NEUROLOGIST ALSO WANTS TO PUT HIM ON AN ANTIDEPRESSANT CALLED CELEXA. I ACTUALLY THINK HE WILL BENEFIT FROM THAT BEACAUSE I SEE HOW DEPRESSED HE HAS BEEN GETTING LATELY, BUT I WONT DO ANYTHING WITHOUT CONSULTING HIS PEDIATRICIAN FIRST. THAT WAS ABOUT IT FOR THE VISIT UNTIL NEXT MARCH.

NOTHING ELSE GOING ON. DAD HAS BEEN CALLING EVERYNIGHT SO THAT IS REALLY HELPING JACKSON TO HEAR DADS VOICE. WELL GOTTA GO NOW. HOPE EVERYONE LIKES JACKSONS NEW FIRETRUCK BACKSGROUND, IT WAS A GIFT FROM KODY'S MOM.

Thursday, September 18, 2003 10:46PM CDT

HELLO EVERYONE, I JUST WANTED TO DO A QUICK UPDATE. JACKSON WOKE UP SICK THIS MORNING. HE HAS A SORE THROAT. AND APPARENTLY IT HAS BEEN HURTING FOR AT LEAST 3 DAYS NOW. I ASKED HIM WHY HE HASN'T TOLD ME AND HIS REPLY IS THAT HE IS SO TIRED OF DOCTORS. NEVER MIND TRYING TO EXPLAIN TO HIM THAT WITH HIM A SORE THROAT CANT LEAD TO HOSPITALIZATION. I GUESS AFTER 10 YEARS HE IS TIRED OF IT. ANYWAY I AM ON MY WAY TO THE PEDIATRICIAN NOW AND WILL UPDATE LATER ON WHAT SHE SAID.

SEPTEMBER 11..8:48 P.M. WELL WE GOT BACK FROM THE PEDIATRICIAN AT 6. SHE PUT JACKSON ON AN ANTIBIOTIC FOR 2 WEEKS. SHE SAID HIS THROAT IS REALLY RED, ALTHOUGH HE TESTED NEGATIVE FOR STREP(HE USUALLY DOES) BUT HE ALSO HAS THE BEGINNINGS OF A MAJOR SINUS INFECTION. HE HAS ALREADY HAD HIS FIRST DOSE OF MEDICNE SO PLEASE KEEP YOUR FINGERS CROSSED THAT HE WILL GET BETTER WITHOUT GOING TO THE HOSPITAL. IT IS SO EASY TO GET TOO COMFORTABLE WITH NOT HAVING HAD TO GO FOR AWHILE AND THEN WHEN IT DOES HAPPEN I FALL APART.I AM GOING TO THINK POSITIVE ABOUT THIS. WE DID FINALLY GET SOME RESULTS ABOUT THE CT SCAN OF HIS LUNGS. SHE SAID IT LOOKED OKAY. SHE WAS WORRIED ABOUT FIBROSIS(LIKE SCAR TISSUE) IN HIS LEFT LUNG BECAUSE THAT IS THE ONE WHERE HIS PNEUMONIAS ARE ALWAYS WORSE AND THAT SIDE COLLAPSES ALMOST ALWAYS. OVER TIME SHE SAID IT CAN BUILD UP SCAR TISSUE. THANK GOODNESS IT HASNT. THATS ABOUT ALL TO UPDATE. WE STILL DONT KNOW WHEN DAD IS COMING HOME AND AT THE MOMENT WE ARE KEEPING OUR EYES ON THAT CATEGORY 5 HURRICANE.(ANOTHER DRAWBACK ABOUT LIVING ON THE GULF COAST)I WILL TRY TO KEEP EVERYONE UPDATED ON HOW JACKSON IS DOING. AND PLEASE REMEMBER LITTLE KATIA IN YOUR PRAYERS.


SEPTEMBER 12.. 10:51 P.M. JACKSON IS STILL SICK AND NOT FEELING TOO GOOD. HE STILL HASN'T RAN A FEVER, BUT I CAN TELL THAT HE IS ALOT MORE SHORT OF BREATH AND THIS HAS ME CONCERNED. PLEASE ANTIBIOTICS START WORKING FASTER! PLEASE PRAY FOR HIM TO GET BETTER. IT IS TOUGH ENOUGH FOR HIM TO BREATH WITHOUT HAVING ANYTHING ELSE TO COMPROMISE IT.

Saturday, June 14, 2003 10:14 PM CDT

HELLO EVERYONE, I FIGURED I MIGHT AS WELL UPDATE. JACKSON WENT TO THE PEDIATRICIAN ON FRIDAY. THE DOC SAYS HE IS LOOKING REALLY GOOD. HE HAS LOST DOWN TO 57 POUNDS THOUGH. I AM GONNA TALK TO HIS NUTRITIONIST NEXT WEEK ABOUT WHETHER WE SHOULD BE CONCERNED OR NOT . HE IS SCHEDULED FOR THE CT OF HIS LUNGS AT 8am MONDAY MORNING. HE IS NOT HAPPY BECAUSE THEY WILL DO AN IV TO PUT DYE IN SO THEY CAN GET A GOOD PICTURE OF HIS LUNGS. POOR GUY DOESN'T LIKE A NEEDLE AT ALL. THEY ALSO DID BLOODWORK AT CLINIC ON FRIDAY TO CHECK HIS ELECTORLYTES. IT TOOK 2 STICKS TO GET IT RIGHT AND OF COURSE JACKSON WAS CRYING SO HARD HE WAS ALMOST HYPERVENTILATING.

WELL TOMMORROW IS FATHER'S DAY AND JACKSON MADE HIS DADDY A SPECIAL PICTURE FRAME WITH A PICTURE OF THE 2 OF THEM IN IT. I HOPE ALL OF THE FATHER'S OUT THERE HAVE A WONDERFUL DAY. AND SPECIAL PRAYERS FOR THE FATHER'S WHO HAVE LOST CHILDREN. THAT INCLUDES US AS WELL. IT HAS BEEN SO MANY YEARS SINCE JACKSON'S SISTER PASSED AWAY BUT THE PAIN IS ALWAYS THERE. SHE WOULD HAVE BEEN 16 ON JULY 7. I AM IN THE PROCESS OF DOING A WEBSITE IN MEMORY OF HER AND I WILL LET EVERYONE KNOW WHEN IT IS COMPLETED. IT IS VERY SAD AT THE NUMBER OF CHILDREN WE HAVE BEEN LOSING LATELY. HUG YOUR CHILDREN CLOSE BECAUSE THEY COULD BE GONE SO QUICKLY.

Monday, June 9, 2003 9:56 PM CDT

HELLO EVERYONE. WELL JACKSON IS OFFICIALLY 10 YEARS OLD. WOO HOO!!! HE HAD A SUPER BIRTHDAY. WE HAD CAKE AND ICE CREAM AND WENT SWIMMING FOR A LITTLE BIT. HE GOT 2 GAMES FOR HIS GAMEBOY, 2 COMPUTER GAMES, A TRACTOR, A KEYBOARD WITH MICROPHONE(THANKS FOR THE NOISE MAW MAW!) A HOTWHEELS RACE TRACK, HOT WHEELS CARS, 5 DOLLARS, SPONGEBOB STICKERS, A SPONGEBOB T-SHIRT AND I THINK THAT IS EVERYTHING. HE DEFINITELY HAD A NICE BIRTHDAY. HE IS DOING GREAT HEALTHWISE. WE GO TO THE PEDIATRICIAN ON FRIDAY TO FINALLY GET THAT BLOOD WORK OF HIS ELECTROLYTES AND TO SCHEDULE THE APPOINTMENT FOR THE CT SCAN OF HIS LUNGS. KEEP HIM IN YOUR PRAYERS. TODAY WAS MY APPOINTMENT WITH THE NEUROLOGIST. HE SAID I DO HAVE RAYNAUDS SYNDROME. HE DID A EMG WHILE I WAS THERE TO CHECK FOR CARPAL TUNNEL BECAUSE THAT CAN CAUSE THE SAME PROBLEMS. I DON'T HAVE CARPAL TUNNEL THOUGH. HE ASKED IF ANYONE IN MY FAMILY HAS LUPUS. NOT THAT I KNOW OF. ANYWAY HE IS SENDING ME TO A RHEUMATOLOGIST. I WILL KEEP EVERYONE UPDATED ON THAT. WELL MY UPDATE HAS BEEN LONG ENOUGH SO I WILL SAY BYE. PLEASE KEEP MY FAMILY IN YOUR PRAYERS.

Tuesday, May 27, 2003 9:09 PM CDT

HELLO EVERYONE. WELL WE ONLY HAVE 12 MORE DAYS UNTIL JACKSON'S BIRTHDAY. HE IS SO EXCITED. HE IS DEFINITELY LOOKING FORWARD TO HIS SWIMMING PARTY. WE HAD A SWIMMING PARTY THIS PAST SUNDAY FOR MY MOM'S BIRTHDAY. SHE TURNED 66. WE HAD LOTS AND LOTS OF FUN. EVEN HAD HOMEMADE ICE CREAM. IF IT WASN'T FOR MY MOM, I WOULD NOT BE THE PERSON I AM TODAY. SHE HAS HELPED ME IN SO MANY WAYS TO COPE WITH JACKSON'S ILLNESS. THANKS MOM. TODAY WE WENT AND HAD JACKSON'S PORT FLUSHED. AND YES HE HOLLERED AS USUAL. IT WOULDN'T BE NORMAL IF HE DIDN'T. AFTERWORDS I TOOK HIM TO THE LIBRARY TO GET SOME BOOKS TO READ FOR THE SUMMER. HE HAS SPENT THE REMAINDER OF THE DAY PLAYING NINTENDO. WELL THATS ABOUT IT, THANKS FOR CHECKING ON US.



IT'S ALMOST JACKSON'S BIRTHDAY!!!!!!




JOURNAL UPDATE- SUNDAY JUNE1,2003. NOT MUCH GOING ON WITH US. JACKSON'S BIRTHDAY IS EXACTLY ONE WEEK FROM TODAY. WOO HOO!!!! MY BOY WILL FINALLY BE 10 YEARS OLD. HE IS PLAYING ON THE COMPUTER AT THIS MOMENT. HE IS SO LONELY AT TIMES. AND I GET SO DISCOURAGED WHEN IT DOESN'T SEEM LIKE ALOT OF PEOPLE CHECK ON HIM. HE HAS DONE SO WELL THE LAST YEAR AS FAR AS GOING INTO THE HOSPITAL. I AM SO GLAD. I CAN ONLY HOPE THAT HIS IMMUNE SYSTEM WILL GET MUCH STRONGER AS HE GETS OLDER. WELL I GUESS THATS ABOUT IT FOR NOW. I DO APPRECIATE THE PEOPLE THAT CHECK ON HIM.
JOURNAL UPDATE....WEDNESDAY, JUNE4.
WELL WE ONLY HAVE 4 MORE DAYS UNTIL JACKSON TURNS 10!!! HE CAN HARDLY CONTAIN HIS EXCITEMENT.. I AM SORRY FOR THE LONG PAGE OF DIFFERENT UPDATES, BUT IT IS A MAJOR PAIN WITH ALL THE GRAPICS TO JUST UPDATE LKE I NORMALY WOULD. ANYWAY AFTER HIS BIRTHDAY I WILL BE CHANGING THE LOOK OF THE PAGE ANYWAY. HE REALLY LIKES SPONGEBOB SO IF ANYONE KNOWS WHERE I CAN FIND SOME CUTE GRAPHICS PLEASE LET ME KNOW. ANYWAY, NOT MUCH GOING ON. IT HAS BEEN HOT AND HUMID(ONE OF THE BAD THINGS ABOUT LIVING ON THE GULFCOAST) WELL EVERYONE TAKE CARE AND I WILL UPDATE AGAIN SOON.
JUNE 7...10:56 PM
WELL TOMMORROW IS THE BIG DAY FOR JACKSON. AND YES HE IS EXCITED. I MADE HIS BIRTHDAY CAKE TODAY AND IT WAS A FLOP. IT WAS RAINY SO I FIGURE THE WEATHER MUST HAVE HAD SOMETHING TO DO WITH IT. I DID MANAGE TO GLUE IT BACK TOGETHER WITH SOME ICING.(MOMS ARE RESOURCFUL FOR SURE)I BOUGHT HIM 2 COMPUTER GAMES AND A JOHN DEERE TRACTOR FOR HIS BIRTHDAY. BEING IN THE COUNTRY, HE LOVES ANYTHING TO DO WITH TRACTORS, HORSES, ETC. HE HAS GOTTEN TONS OF BIRTHDAY CARDS IN THE MAIL. THANKS EVERYONE. WELL GOTTA GO NOW. I WOULD LIKE YOU ALL TO KEEP MY AUNT IN YOUR PRAYERS TONIGHT . SHE IS IN THE HOSPITAL DYING FROM CANCER. THEY ONLY GIVE HER A FEW MORE DAYS. JACKSON HAS ALWAYS BEEN SPECIAL TO HER. I WILL UPDATE AGAIN AFTER THE PARTY.

Saturday, May 17, 2003 10:26 PM CDT

HELLO EVERYONE. SORRY THAT I HAVEN'T UPDATED LATELY, BUT HONESTLY THERE DOESN'T SEEM TOO MANY PEOPLE CONCERNED ABOUT HOW HE IS DOING, SO I FIGURED WHY BOTHER. MAYBE I AM JUST FEELING DOWN. I HAVE BEEN SO TIRED DUE TO THIS ANEMIA AND I HAVE NO ENERGY WHAT SO EVER. AND TONIGHT I FOUND OUT THAT THE LAST GREAT AUNT THAT I HAVE IS DYING OF CANCER. LIFE SUCKS SOMETIMES FOR SURE. ON A LIGHTER NOTE, JACKSON IS DOING GREAT. COUNTING HIS DAYS TO HIS BIRTHDAY. WE NOW HAVE 16 TO GO. WELL, THATS ABOUT IT. HOPE EVERYONE HAS A NICE WEEKEND.



IT'S ALMOST JACKSON'S BIRTHDAY!!!!!

Tuesday, May 13, 2003 9:22 PM CDT

HELLO EVERYONE. HOPE EVERYONE HAD A GREAT MOTHER'S DAY. I DID. JACKSON GAVE ME A LITTLE NOTE THAT HE WROTE ALL BY HIMSELF(HE ONLY HAD A LITTLE HELP FROM HIS THERAPIST) AND IT SAID "HAPPY MOTHER'S DAY MOMMA, I LOVE YOU." IS THAT SWEET OR WHAT? SOMETIMES HE IS STILL VERY MUCH MY LITTLE BABY. I SOMETIMES WISH I COULD KEEP HIM THAT WAY. ANYWAY, WE HAD MY MOM AND DAD UP TO GO SWIMMIMG ON MOTHER'S DAY AND MY BROTHER AND HIS DAUGHTER AND MY OLDEST DAUGHTER AND HER BABY.WE DEFINITELY HAD A FULL HOUSE. THEN THEY CONNED DAD INTO BUYING PIZZA FOR SUPPER SO I WOULDN'T HAVE TO COOK. JACKSON CONTINUES TO DO WELL. THE ONLY PROBLEM IS THAT RASH HE GETS OFTEN IS BACK AND THIS TIME IT LOOKS REALLY BAD. I HAVE BEEN TRYING TO FIX IT WITHOUT A TRIP TO THE DOC, BUT DON'T KNOW IF IT WILL WORK. HE IS STARTING TO TALK ALOT ABOUT HIS BIRTHDAY NOW. ITS JUNE 8. IT IS HARD TO BELEIVE HE WILL BE 10. I GOTTA DO SOMETHING REALLY SPECIAL FOR HIM. WELL GOTTA GO NOW, I HAVE AN APARTMENT TO GO CLEAN IN THE MORNING. THANKS FOR CHECKING ON US.









JACKSON'S BIRTHDAY IS ALMOST HERE!!!!!

Friday, May 9, 2003 9:27 PM CDT

HELLO EVERYONE. HOPE YOU ALL ARE LOOKING FORWARD TO THE WEEKEND AHEAD. WE ARE FINE. I FINALLY TOOK JACKSON SWIMMING THIS AFTERNOON, AND BOY WAS HE EXCITED! IT WAS 90 DEGREES OUTSIDE AND THE WATER WAS 89. LOOKS LIKE SUMMER IS ALMOST UPON US. HIS NUTRITIONIST CALLED TODAY TO CHECK ON HIS WEIGHT. HE IS STILL HOLDING AT 58 POUNDS AFTER REDUCING THE AMOUNT OF PEDIASURE HE IS GETTING. I TAKE AWAY ANOTHER CAN AT NIGHT STARTING ON MONDAY. SO FAR SO GOOD. TONIGHT HE ATE 3 TACOS. WOW! DID I MENTION TACOS ARE ONE OF HIS FAVORITE THINGS? IN FACT HE PICKED OUT SUPPER TONIGHT. WE STILL HAVEN'T HEARD WHEN THEY ARE GOING TO DO THE CT ON HIS LUNGS. I GUESS I WILL CALL MONDAY TO FIND OUT IF THEY HAVE TALKED TO THE PULMONOLOGIST YET. WILL KEEP EVERYONE UPDATED ABOUT THAT. THE NEW BABY HORSE IS DOING GREAT. SHE IS SO SOFT AND FUZZY. I HOPE TO GET THE PICS DEVELOPED SOON. I HOPE THAT ALL OF THE MOTHERS EVERYWHERE HAVE A GREAT MOTHER'S DAY ON SUNDAY. THANKS FOR CHECKING ON US.

Tuesday, May 6, 2003 9:59 PM CDT

HELLO EVERYONE. WE HAVE HAD A VERY EXCITING DAY TODAY. FIRST, AT 4A.M. THIS MORNING, JACKSON'S HORSE SPARKLES, FINALLY GAVE BIRTH TO A LITTLE FILLY. HER NAME...POCAHONTAS, OF COURSE. IT WAS TO BE SPIRIT IF IT WAS A BOY. JACKSON OF COURSE IS ON CLOUD NINE. ACTUALLY WE ALL ARE. THEN LATER ON TODAY, HIS TEACHER AND I TOOK HIM ON HIS LAST FIELD TRIP FOR THE SCHOOL YEAR. WE WENT TO A CONFEDERATE BATTLEFIELD PARK. IT WAS GREAT. A LITTLE HOT AND MUGGY, BUT STILL ENJOYABLE. JACKSON LOVES HISTORY SO HE WAS SO EXCITED ABOUT GOING. HIS TEACHER ALSO TOOK HER 7 YEAR OLD SON SO THAT JACKSON COULD ACTUALLY INTERACT WITH ANOTHER CHILD. ALL IN ALL HE HAS HAD A HAPPY DAY. HE DEFINITELY DESERVES IT TOO. HIS HEALTH CONTINUES TO BE GOOD.(CAN YOU HEAR ME KNOCKING ON WOOD?) HE DID LOTS OF WALKING TODAY SO HIS PHYSICAL THERAPIST WOULD BE PROUD. ANYWAY WE TOOK PICTURES OF THE NEW HORSE AND WILL PUT THEM UP WHEN DEVELOPED. THANKS FOR CHECKING ON US.

Saturday, May 3, 2003 10:07 PM CDT

HELLO EVERYONE, JUST A QUICK UPDATE BEFORE I GO TO BED. JACKSON ACTUALLY WENT TO BED EARLY FOR A CHANGE. HE PLAYED REALLY HARD ALL DAY WITH HIS NEICE. OF COURSE IT DOESN'T TAKE A WHOLE LOT TO WEAR HIM OUT ANYWAY. WE STILL HAVE NOT HEARD ABOUT WHEN THE CT OF HIS LUNGS WILL BE. HE HAS TO GO FOR BLOOD WORK THIS WEEK SOMETIME. ITS BEEN REALLY HUMID THE LAST COUPLE OF DAYS MAKING HIM MORE SHORT OF BREATH. POOR GUY. HE WANTED US TO GO SWIMMING IN THE POOL TODAY BUT IT ENDED UP RAINING, SO MAYBE TOMMORROW WE CAN. MONDAY WE HAVE HIS IEP MEETING FOR HIS HOMEBOUND SCHOOLING NEXT YEAR. AND TUESDAY HIS HOMEBOUND TEACHER AND I ARE TAKING HIM ON A FIELD TRIP TO A CIVIL WAR BATTLE FIELD. HE IS SO EXCITED. THE PEOPLE ARE EVEN GOING TO MAKE AN EXCEPTION AND GIVE US A PERSONAL TOUR JUST FOR JACKSON. IT IS SO NICE TO KNOW THERE ARE CARING PEOPLE IN THE WORLD. WELL THATS ABOUT IT FOR NOW. EVERYONE HAVE A SUPER WEEKEND.

Thursday, May 1, 2003 11:06 PM CDT

HELLO EVERYONE, AND YES I HAVE TOOK MY TIME ABOUT UPDATING. IT'S ONLY BEEN A FEW DAYS, AND SOMETIMES NO NEWS IS GOOD NEWS. AT LEAST ON THIS END. JACKSON IS DOING GREAT. HE JUST FINISHED UP THE LAST OF HIS HOMEWORK. HE ALSO FINISHED A PROJECT ABOUT THE FOOD PYRAMID. KINDA IRONIC CONSIDERING HE DOESN'T EAT ALOT BY MOUTH. WE DID HAVE HIS FAVORITE FOOD TONIGHT THOUGH...SPAGHETTI!!!! AND OF COURSE HE FILLED HIS BELLY FULL. NOW HE IS WATCHING TV AND WAITING ON BEDTIME(YES HE DOES HAVE A BEDTIME-NOT. LOL!) IT'S KINDA HARD NOT TO SPOIL YOUR CHILDREN WHEN THEY HAVE BEEN THROUGH SO MUCH IN THEIR LIVES. AND HE KNOWS HOW TO WORK ME AT TIMES TOO. HE IS NOT AS GOOD WITH DAD THOUGH. DAD SEES RIGHT THROUGH HIM. MOM DOES TOO I JUST PRETEND I DON'T. ANYWAY. I GOT BIT BY A HORSE FLY THIS EVENING AND APPARENTLY I AM VERY ALLERGIC TO THEM BECAUSE MY HAND IS SO SWOLLEN. AND TALK ABOUT HURTING. THE BENEDRYL IS DEFINITELY TAKING ITS TIME ABOUT WORKING. HOPEFULLY IT WILL GET BETTER SOON. IT'S NOT EASY TYPING EITHER. KINDA SLOW AT IT. HOPE YOU ALL HAVE A GOOD WEEKEND. WE WILL BE HAVING THE GRANDBABY SPEND THE NIGHT TOMMORROW NIGHT AND I HOPE TO GET SOME FLOWER BEDS PLANTED. WILL UPDATE AGAIN SOON.

Monday, April 28, 2003 10:51 PM CDT

HELLO EVERYONE. I AM OFF TO BED AND WANTED TO UPDATE ABOUT THE VISIT TO PENSACOLA TO SEE THE PULMONOLOGIST. I LEFT AT 10 THIS MORNING AND DIDN'T GET HOME UNTIL 5. NO WONDER I AM SO TIRED. ANYWAYS, I REALLY LIKED HIM ALOT. HE WASN'T ARROGANT AND A KNOW IT ALL LIKE THE LAST PULMONOLOGIST HE HAD. HE SAYS WE DEFINITELY NEED A DIAGNOSIS ON WHAT JACKSON HAS. GOOD LUCK I SAY. HE SAID THERE IS A GREAT NEUROLOGIST IN ATLANTA WHO IS VERY GOOD AT DIAGNOSING THINGS THAT NO ONE ELSE CAN. WE MAY TALK SOON ABOUT THAT. HE HAS TO START HAVING A BREATHING TREATMENT EVERY MORNING NO MATTER WHAT, AND MORE IF HE IS SICK. HE ALSO HAS TO START USING A FLUTTER VALVE. SOME OF YOU MAY KNOW WHAT THAT IS. HE IS ALSO GOING TO BE HAVING A CT SCAN OF HIS LUNGS WHENEVER THEY GET THE APPT. TO CHECK FOR LUNG DAMAGE AND OTHER THINGS. AND ALSO HIS HERNIA. THE DOC IS CONCERNED ABOUT THE HERNIA BECAUSE IF HE HAS THAT THAN IT MIGHT MEAN THE NISSAN ISN'T HOLDING, WHICH IS NOT GOOD. ASPIRATION PNEUMONIA WOULD NOT BE GOOD. WE GO BACK IN 2 MONTHS AND BY THAN HE WILL HAVE ALL OF THE RESULTS FROM HIS PULMONARY FUNCTION TESTS AND THE SLEEP STUDY THAT HE HAD AT UAB.
HE ALSO WANTS A COMPLETE WORKUP ON HIS THYROID AND ALL ENDOCRINE GLANDS TO MAKE SURE WE AREN'T MISSING ANYTHING THERE.
THATS ABOUT IT, WE HAVE HAD A BUSY DAY AND I AM SAYING GOODNIGHT.

Saturday, April 26, 2003 9:04 PM CDT

HELLO EVERYONE, HOPE YOU ARE HAVING A GREAT WEEKEND.
OURS IS OKAY SO FAR. ON FRIDAY WE FINALLY HEARD FROM THE PULMONOLOGIST IN PENSACOLA. GUESS THEY FINALLY DECIDED TO RESCHEDULE OUR APPOINTMENT. ANYWAYS WE GO THIS COMING UP MONDAY. THAT WILL BE AN HOUR THERE AND AN HOUR BACK. AND WHATEVER IN BETWEEN. WITH A FIRST TIME APPOINTMENT IT'S BOUND TO BE LONG. NOTHING MUCH ELSE GOING ON. JACKSON IS DOING GREAT.(HOORAY!) LOOKS LIKE I MIGHT HAVE TO START EARNING SOME EXTRA MONEY TO HELP DAD PAY SOME OF THE BILLS. HE HASN'T BEEN ABLE TO WORK ALL THAT OVERTIME SINCE HAVING THAT STROKE. I AM SUPPOSE TO START CLEANING SOME HOUSES AND DOING IRONING FOR SOME PEOPLE.2 OF MY WORSE CHORES! OH WELL DAD NEEDS MY HELP. THE WEATHER HERE IS GREAT, JUST WAITING ON THE WATER IN THE POOL TO WARM UP SO WE CAN GO SWIMMING. WELL GOTTA GO FOR NOW, I WILL UPDATE AGAIN AFTER HIS APPOINTMENT ON MONDAY. HAVE A GREAT SUNDAY!

Thursday, April 24, 2003 9:41 PM CDT

HELLO ALL. TODAY JACKSON WENT TO HAVE HIS POR-A-CATH FLUSHED. AND GUESS WHAT.... HE DIDN'T SCREAM AT ALL!!! COULD HE BE GROWING UP? EITHER THAT OR IT MAY HAVE BEEN BECAUSE SHE IS VERY PRETTY. SHE EVEN TOLD JACKSON SHE WORE HER FAVORITE LIP GLOSS(STRAWBERRY) JUST FOR HIM. LOL! I THINK HE WAS JUST PLAIN SPEECHLESS. ANYWAY, I TOOK HIM TO WALMARTS AND LET HIM PICK OUT A SMALL TOY. OF COURSE IT WAS A FARM TRACTOR. WHY NOT, WE DO LIVE IN THE COUNTRY AFTER ALL. NOT MUCH ELSE GOING ON. ITS RAINING RIGHT NOW AND OF COURSE MY ALLERGIES ARE KILLING ME. I FINALLY HAD TO TAKE A BENADRYL, WHICH I HATE BECAUSE THEY MAKE ME GO TO SLEEP. JACKSON IS LOOKING FORWARD TO THE WEEKEND AND SO AM I. I ALSO ASK THAT YOU KEEP A SPECIAL LITTLE GIRL IN YOUR PRAYERS TOO RIGHT NOW. SHE IS ANOTHER HOMEBOUND STUDENT THAT JACKSON'S TEACHER ALSO SEES. SHE IS 5 YEARS OLD AND RIGHT NOW IS IN PICU BEACAUSE OF COMPLICATIONS OF RSV. SHE IS ON A VENT AND HER KIDNEYS ARE SHUTTING DOWN. PLEASE SAY A PRAYER FOR THIS LITTLE GIRL AND ALL OF THE OTHER ONES THAT ARE IN NEED AS WELL.

Tuesday, April 22, 2003 8:21 AM CDT

HELLO EVERYONE. HOPE YOU ALL HAD A GREAT EASTER. WE SURE DID. LAST EASTER JACKSON WAS IN THE HOSPITAL , SO WE WERE DEFINITELY MORE BLESSED THIS YEAR. THE EASTER BUNNY OF COURSE VISITED AND JACKSON EVEN GOT A LETTER FROM HIM ON SATURDAY AND BOY WAS HE HAPPY!! THAT DAY, MAWMAW, PAWPAW, AND UNCLE KENNY CAME FOR DINNER AT OUR HOUSE. THAT AFTERNOON MY BROTHER GOT HIS DAUGHTER FOR AWHILE AND WE HID EGGS AND PUT THE BARBIE'S BOAT IN THE POOL.(JACKSON JUST LOVED IT WHEN THE BARBIES CAPSIZED)IT WAS BEAUTIFUL WEATHER AND JUST A PERFECT DAY. JACKSON FINISHED HIS ANTIBIOTIC A FEW DAYS AGO AND HE IS FEELING GREAT. WE GO ON THURSDAY TO DO A PORT FLUSH. WE MAY GO FOR OTHER BLOOD WORK THIS WEEK ALSO, BECAUSE THE PEDIATRICIAN WANTS TO CHECK HIS ELECTROLYTES AND OTHER THINGS BECAUSE HE HAS HAD TREMORS A LITTLE MORE LATELY. I THINK IT IS STILL FROM YEARS OF TAKING REGLAN WITHOUT MY KNOWING THE NEUROLOGICAL SIDE AFFECTS THAT COULD BE PERMANENT. I AM STILL MAD ABOUT THAT. DOCTORS SHOULD TELL ALL SIDE AFFECTS AND LONG TERM DAMAGE FOR ANY MEDICATION THAT THEY GIVE TO A CHILD!! OKAY ENOUGH OF MY BABBLING. HAVE A GREAT WEEK!

Friday, April 18, 2003 10:11 PM CDT

HELLO EVERYONE.... PLEASE CHECKOUT THE NEW PICTURES OF JACKSON AT THE FIRESTATION ON OUR RECENT TRIP TO FLORIDA. THE FIREHELMET HE IS WEARING BELONGS TO HIS UNCLE ROY. WE ARE ALL DOING FINE. GETTING THE YARD READY FOR EASTER. MY FAMILY WILL ALL BE COMING HERE FOR EASTER. TODAY WAS A LITTLE HOT, BUT JACKSON DID GET TO GO OUTSIDE FOR SHORT PERIODS OF TIME. DAD EVEN PUT UP HS TENT. HE REALLY LOVED THAT! HE IS ALMOST THROUGH TAKING HIS ANTIOBIOTIC FOR HIS SORE THROAT. HE IS NOW WAITING ON ME TO GET OFF THE COMPUTER SO THAT HE CAN GET ON. WILL UPDATE AGAIN SOON. HOPE EVERYONE HAS A WONDERFUL EASTER.

Wednesday, April 16, 2003 12:33 AM CDT

HELLO EVERYONE, HAPPY WEDNESDAY. BY NOW I AM SURE MOST OF YOU KNOW THAT WE DID GET TO GO TO FLORIDA. WE LEFT FRIDAY MORNING AND GOT TO MY SISTERS AROUND 5 THEIR TIME. SATURDAY MORNING WE SPENT THE ENTIRE DAY AT DISNEY WORLD. IT WAS AWESOME. JACKSON WAS HAPPIER THAN I HAVE SEEN HIM IN A LONG TIME. SUNDAY WE CELEBRATED EASTER WITH MY SISTER AND BROTHER-IN-LAW. MONDAY WE WENT BACK TO ANIMAL KINGDOM AND MGM. THAN BEFORE WE LEFT ORLANDO, WE WENT BY THE FIRE STATION TO SEE HIS UNCLE. WE GOT LOTS OF PICS OF JACKSON ON THE FIRETRUCK, ETC. HOPE TO PUT THEM IN HIS PHOTO JOURNAL SOON. ANYWAY WE HAD A FANTASTIC TIME. WE ALMOST DIDN'T GET TO GO BECAUSE JACKSON GOT A SORE THROAT THE DAY BEFORE. HIS DOC GAVE HIM SOME AUGMENTIN, SAID IT WAS HIS SINUSES AND TO GO AHEAD AND TAKE HIM THAT HE WOULD BE FINE. AND HE WAS.
DAD IS STILL DOING OKAY. THEY PUT HIM ON A SECOND BLOOD PRESSURE PILL BECAUSE THEY CAN'T GET HIS BLOOD PRESSURE TO GO DOWN. OTHER THAN THAT HE IS DOING FINE. WELL GOTTA GO AND THANKS EVERYONE FOR CHECKING ON US.

Friday, April 4, 2003 9:14 PM CST

HELLO EVERYONE, HAPPY FRIDAY NIGHT. HOPE YOU ARE ALL READY FOR THE WEEKEND. WE ARE WATCHING JURASSIC PARK 3. JACKSON JUST LOVES THOSE THRILLER MOVIES. BUT I AM SURE BY THE TIME HE GOES TO BED, HE WILL BE BEGGING ME TO SLEEP WITH HIM SO HE WON'T BE SCARED. MY LITTLE MAN IS STILL A BABY AT HEART.
NOT MUCH HAS BEEN GOING ON WITH US. THAT IS ACTUALLY A GOOD THING. JACKSON HAS AN APPOINTMENT ON WEDNESDAY TO SEE ONE OF HIS PEDIATRICIANS ABOUT HIS FOLLICULITIS RASH. MAYBE THEY WILL SEND HIM TO A DERMATOLOGIST THIS TIME. OBVIOUSLY THEY ARE NOT FINDNG THE CAUSE OR THE CURE. HIS TEACHER AND HIS OCCUPATIONAL THERAPIST CAME TODAY. THEY ARE TEACHING HIM HOW TO WRITE IN CURSIVE. JACKSON HATES WRITING OF ANY KIND BECAUSE HIS HANDS GET SO TIRED QUICKLY BECAUSE OF HIS UNDERLYING MUSCLE DISORDER. ITS THE SAME WITH HIS WALKING. HE GETS SO TIRED. ANYWAY...SPRING BREAK WILL BE STARTING SOON. ON THE 14TH ACTUALLY. WE WILL BE LEAVING NEXT FRIDAY ON THE 11TH GOING TO CENTRAL FLORIDA TO VISIT MY SISTER AND HER HUSBAND. JACKSON IS SO LOOKING FORWARD TO IT. MY SISTERS HUSBAND IS HIS MOST FAVE UNCLE. HE IS A FIREMAN/PARAMEDIC AT THE COUNTY FIRESTATION AT DISNEY WORLD.
IS THAT LUCKY OR WHAT? THEY ARE WANTING TO TAKE US TO DISNEY BUT I HAVEN'T DISCUSSED IT WITH HIS DOC YET. AND OF COURSE THERE WOULD HAVE TO BE SO MANY PRECAUTIONS TO TAKE TO INSURE THAT HE DOESN'T CATCH ANYTHING. CROSS YOUR FINGERS THAT JACKSON WILL GET TO GO.
WELL THATS ABOUT IT FOR NOW. THANKS TO EVERYONE WHO VISITS OUR WEBPAGE, AND PLEASE REMEMBER OUR TROOPS IN PRAYER.

Wednesday, April 2, 2003 8:37 PM CST

HELLO EVERYONE. ONCE AGAIN I AM SLOW ABOUT UPDATING, NOT THAT THERE IS MUCH TO UPDATE ON. AND THAT IS GOOD. TODAY IS JACKSON'S SISTER BRANDY'S BIRTHDAY. SHE IS OFFICIALLY 17 NOW. WE HAD A CAKE FOR HER TONIGHT AND JACKSON EVEN ATE A SMALL BITE. HORRAY JACKSON!!! HE IS DOING PRETTY GOOD ON THE EATING THING. WE ARE VERY PROUD. THE PULMONOLOGY CLINIC HAS NOT GOTTEN IN TOUCH WITH ME YET TO RESCHEDULE THE APPOINTMENT THAT THEY CANCELED. GUESS THEY DON'T FEEL LIKE HURRYING. JACKSON'S FOLLICULITIS RASH IS BACK AGAIN SO I MAY NEED TO MAKE A TRIP TO THE PEDIATRICIAN. I DON'T KNOW WHY HE KEEPS GETTING THAT OVER AND OVER. ANYWAY THE WEATHER IS GREAT HERE AGAIN, BACK UP TO 80 AGAIN THANK GOODNESS. WELL THATS ABOUT ALL FOR NOW, I WILL UPDATE AGAIN SOON. AND DON'T FORGET.... PLEASE PRAY FOR OUR TROOPS.

Saturday, March 29, 2003 8:29 PM CST

HELLO EVERYONE. HOPE YOU ALL ARE HAVING A GOOD WEEKEND. OURS IS GOING OKAY. JACKSON IS DOING GOOD. I DON'T WANT TO KEEP BRAGGING, BUT IT IS SO NICE FOR HIM TO BE DOING GREAT. HIS APPOINTMENT ON MONDAY TO SEE THE NEW PULMONOLOGIST WAS CANCELED FOR AN EMERGENCY. I AM VERY DISAPPOINTED. THEY ARE SUPPOSED TO CALL ME ON MONDAY TO RESCHEDULE, HOPEFULLY IT WILL BE SOON. DAD IS FEELING OKAY TOO. MAYBE THINGS ARE GETTING BACK TO NORMAL, I HOPE. THE GRANDBABY IS GOING TO SPEND THE NIGHT TOMMORROW NIGHT. I HAVEN'T KEPT HER LATELY BECAUSE OF JACKSON'S DADDY NOT FEELING WELL AND ALL. BUT HE INSISTS ON HER SPENDING THE NIGHT SO I GUESS PAWPAW MISSES HER. (I DO TOO OF COURSE) NOTHING MUCH ELSE GOING ON. JACKSON'S SISTER BRANDY HAS A BIRTHDAY ON APRIL2. SHE WILL BE 17! WOW, HOW TIME FLIES! ANYWAY THANKS FOR CHECKING IN ON US AND REMEMBER TO KEEP OUR TROOPS IN YOUR PRAYERS.
GOD BLESS THE USA!!!!

Wednesday, March 26, 2003 8:50 PM CST

HELLO EVERYONE, I'M SORRY FOR NOT UPDATING SOONER. EVERYONE HERE IS DOING GREAT. JACKSON IS DOING REALLY GOOD. HE IS WATCHING CARTOON NETWORK AND EATING HIS RICE.WE HAVE CUT AWAY ONE OF HIS CANS OF MILK AT NIGHT AND ARE TRYING TO ENCOURAGE HIM TO EAT MORE BY MOUTH. LET ME TELL YOU IT HASN'T BEEN EASY! IN ANOTHER WEEK WE ARE SUPPOSE TO TAKE AWAY THE ONE CAN OF MILK THAT HE GETS DURING THE DAY. I DON'T KNOW IF THAT WILL HAPPEN AS FAST AS THEY WANT BECAUSE IT ISN'T EASY TO GET HIM TO EAT, AND I AM SURE NOT GOING TO LET HIM GO WITHOUT ANY MILK AT ALL IF HE ISN'T EATING. ANYWAY.... DAD IS DOING OKAY. THE BLOOD PRESSURE MEDICINE HE IS ON IS MAKING HIM FEEL BAD AND PLUS THE FACT THAT HE QUIT SMOKING WELL NEEDLESS TO SAY HE ISN'T THE HAPPIEST PERSON RIGHT NOW. WE KEEP TELLING HIM THAT IT WILL GET BETTER.
TODAY WE TOOK JACKSON'S SISTER BRANDY TO GET HER PERMIT. SHE PASSED OF COURSE. AND NATURALLY WANTED TO DRIVE HOME. BUT I WOULDN'T LET HER DRIVE UNTIL AFTER WE HAD CROSSED OVER THE BIG DAM ON THE WAY HOME. SHE MADE ME A LITTLE NERVOUS, BUT SHE DID OKAY. WELL THATS ABOUT IT FOR NOW. PLEASE SIGN THE GUESTBOOK TO LET US KNOW YOU WERE HERE, AND MOST IMPORTANT, PLEASE PRAY FOR OUR TROOPS.

Saturday, March 22, 2003 10:39 PM CST

HELLO EVERYONE. EVERYTHING IS GOING ALRIGHT HERE AT OUR HOUSE. JACKSON FELL ASLEEP ON THE COUCH WATCHING A MOVIE THAT HIS SISTER RENTED. GUESS HE GOT UP TOO EARLY. HE HAS PLAYED PRETTY HARD TODAY. THE WEATHER HAS BEEN BEAUTIFUL. HE WENT TO NEURO CLINIC ON FRIDAY. THEY DIDN'T CHANGE ANYTHING OTHER THAN THEY WANT TO TRY TO START WEANING HIM OFF OF TUBE FEEDINGS IF POSSIBLE. WE STARTED CUTTING BACK LAST NIGHT ON THE CONTINUOUS FEEDS. OUR GOAL HAS ALWAYS BEEN TO BE ABLE TO GET RID OF G-TUBE FEEDINGS ALL TOGETHER.
HOPEFULLY WE WILL BE ABLE TO DO THAT. DAD IS DOING ALRIGHT. HE SILL GETS TIRED REAL EASY, BUT SEEMS TO SLOWLY BE RECOVERING FROM THE STROKE. WELL THATS ABOUT ALL OF THE UPDATE FOR NOW. PLEASE KEEP OUR TROOPS IN YOUR PRAYERS.

Wednesday, March 19, 2003 11:20 PM CST

HELLO EVERYONE, JUST THOUGHT I WOULD UPDATE REAL QUICK BEFORE GOING TO BED. I HAD TO PRACTICALLY PRY JACKSON AWAY FROM THE COMPUTER SO I COULD GET ON. HE ISN'T EVEN CLOSE TO BEING READY FOR BED YET. TOMMORROW WE HAVE TO GO TO THE HOSPITAL FOR A SPINAL XRAY TO CHECK ON HIS SCOLIOSIS. FRIDAY WE GO TO CLINIC TO SEE THE NEUROLOGIST AND ORTHOPEDIC DOC FOR OUR 6 MONTH CHECKUP. OTHERWISE HE IS DOING GOOD HEALTHWISE. ALLERGY SEASON IS STARTING AND I CAN TELL ALREADY IT IS STARTING TO BOTHER HIM. HOPEFULLY HEWONT HAVE TOO MUCH TROUBLE. DAD WENT TO THE CARDIOLOGIST TODAY TO FIND OUT ABOUT HIS STROKE. HE DIDN'T KNOW ANY MORE THAN HE DID BEFORE HE WENT IN. I AM VERY MAD ABOUT THE UTTER LACK OF CONCERN ABOUT WHY HE HAD A STROKE IN THE FIRST PLACE. DAD DOESN'T KNOW IT YET BUT TOMMORROW I WILL BE SHOPPING AROUND FOR A SECOND OPINION. THEY SAID HIS BLOCKAGE WASNT THAT BAD(MUST HAVE BEEN IF HE HAD A STROKE)
HE WASNT CONCERNED ABOUT HIS ABNORMAL HEART RATE. THE ONLY THING THEY DID SAY WAS THAT HIS BLOODPRESSURE WAS UP SO THEY PUT HIM ON BLOOD PRESSURE MEDICINE. THE WHOLE THING IS VERY FRUSTRATING. ANYWAY I WILL UPDATE AGAIN SOON. AND PLEASE PRAY FOR OUR TROOPS .

Monday, March 17, 2003 11:04 PM CST

HELLO EVERYONE. NOT ALOT GOING ON HERE IN OUR PART OF THE WORLD. JACKSON IS DOING GREAT. HOORAY!! HE IS IN THERE WATCHING A MOVIE ABOUT THE IRISH(OF COURSE.. ITS ST PADDY'S DAY RIGHT?) AND HE IS HAVING A BOWL OF RICE. HIS EATING HABITS NEED ALOT OF WORK, BUT HEY AT LEAST HE IS EATING SOMETHING. THE TEACHER CAME TODAY AND OF COURSE THEY DID ALOT OF ST.PATRICK'S DAY ACTIVITES. TODAY IS ALSO HIS OLDEST SISTER'S BIRTHDAY. SHE TURNED 21. ITS HARD TO BELEIVE. ANYWAY, DAD WENT BACK TO WORK TODAY FOR THE FIRST TIME SINCE HAVING HIS STROKE. HE SAYS HE WAS VERY SLOW. BUT HE DID MANAGE. HE GOES TO THE CARDIOLOGIST ON WEDNESDAY SO PLEASE SAY AN EXTRA PRAYER FOR HIM. HE IS ALSO TRYING TO QUIT SMOKING. HE STARTED WITH THE PATCH LAST NIGHT. I HAVE THE DOCTORS PERMISSION TO HIT HIM OVER THE HEAD IF HE DOESN'T QUIT SMOKING.(I DON'T THINK IT WILL COME TO THAT)
ANYWAY, THATS ABOUT IT. OH I ALMOST FORGOT, MY OTHER DAUGHTER WHO IS A JUNIOR IN HIGH SCHOOL GOT HER REPORT CARD TODAY- STRAIGHT A'S. BOY AM I HAPPY OR WHAT? SHE IS THE SENSIBLE ONE IN THE FAMILY. SHE HAS ALREADY PICKED WHAT SHE WILL BECOME AND EVERYTHING. SHE IS GOING TO BE A PULMONOLOGIST(LUNG DOCTOR) SHE WANTS TO HELP OTHER KIDS LIKE JACKSON. WHAT A SWEET SIS. ANYWAY I WILL UPDATE AGAIN AFTER DAD GOES TO THE CARDIOLOGIST. TAKE CARE AND THANKS FOR SIGNING HIS GUESTBOOK.

Friday, March 14, 2003 10:30 PM CST

HELLO EVERYONE. I HOPE EVERYONE IS READY FOR THE WEEKEND. JUST WANTED TO UPDATE ON JACKSON AND DAD. JACKSON IS DOING GREAT. HE HAS BEEN PLAYING OUTSIDE ALOT SINCE THE WEATHER IS DOING OKAY. HIS COUSIN KRISTINA IS COMING FOR A VISIT TOMMORROW, SO HE IS VERY HAPPY ABOUT THAT. WELL WE TOOK DAD BACK TO THE NEUROLOGIST TODAY TO FIND OUT WHY HE HAD A STROKE. HE DOES HAVE BLOCKAGE IN HIS ARTERIES IN HIS NECK. THE RIGHT SIDE IS WORSE THAN THE LEFT. HIS MAGNESIUM WAS LOW SO THE DOC PUT HIM ON MEDICINE FOR THAT. HE GOES TO SEE THE CARDIOLOGIST ON WEDNESDAY. THE DOC SAYS HE WILL RECOVER, BUT IT WILL TAKE TIME. DAD IS GETTING REALLY FRUSTRATED BECAUSE HE CANT FOCUS HIS BRAIN LIKE NORMAL.I WILL UPDATE AGAIN ON DAD WHEN I FIND OUT SOMETHING. HAVE A GREAT WEEKEND.

Wednesday, March 12, 2003 10:24 PM CST

HELLO EVERYONE. JUST A QUICK UPDATE TO LET EVERYONE KNOW HOW THINGS ARE GOING. THANKS FOR ALL OF THE PRAYERS GOING OUT FOR DAD. THEY MEAN ALOT. WE WENT YESTERDAY AND HAD MORE TEST DONE. AND DAD ALSO HAD TO WEAR A HEART MONITOR FOR 24 HOURS. I HARRASSED HIM ABOUT IT AND TOLD HIM IT WAS HIS PURSE. HE GOT TIRED OF CARRYING THAT THING AROUND!! WE HAVE AN APPOINTMENT WITH HIS NEUROLOGIST ON FRIDAY TO FIND OUT THE RESULTS OF ALL OF THE TEST AND WHERE WE GO FROM HERE. PRAYERS ARE DEFINITELY NEEDED. I AM NOT SURE WHEN HE WILL RETURN TO WORK. I TOLD HIM THAT ALTHOUGH I LOVE HIM BEING HOME, I AM A LITTLE TIRED OF HIS SUPERVISING MY HOUSE WORK!
ANYWAY, JACKSON IS DOING GREAT. WE GO TOMMORROW TO HAVE HIS PORT FLUSHED. WHAT FUN THAT WILL BE FOR SURE. WELL GOTTA GO WILL UPDATE AGAIN SOON.

Monday, March 10, 2003 10:57 PM CST

HELLO EVERYONE, JUST WANTED TO DO A SHORT UPDATE ON WHAT'S GOING ON. JACKSON IS GREAT. IT HAS FINALLY STOPPED RAINING AND ITS BEEN UP TO 70 DEGREES, SO HE HAS BEEN OUTSIDE ALOT. THE GRANDBABY'S BIRTHDAY PARTY ON SATURDAY WENT GREAT. IT WAS RAINING SO THAT PUT A DAMPER ON DOING THE SPONGEBOB PINADA. WE HAD TO WORK AROUND THE RAIN TO DO IT. BUT JACKSON COULD REALLY KNOCK THE HECK OUT OF THAT THING.
WE FOUND OUT TODAY THAT DAD DEFINITELY HAD A STROKE ON THE RIGHT SIDE OF HIS BRAIN. HE HAS BEEN HAVING AN IRREGULAR HEARTBEAT TOO I GUESS FROM THE STROKE. THEY ARE STILL TRYING TO FIND OUT WHAT CAUSED IT. TOMMORROW WE GO FOR HIM TO HAVE AN EEG AND A TEST ON THE VEIN IN HIS NECK GOING TO THE BRAIN. THEY THINK IT MAY BE BLOCKED. MY HUSBAND IS A VERY ENERGETIC MAN AND I DON'T LIKE SEEING HIM LIKE HE IS NOW. HE IS VERY SLOW AND TIRES VERY EASY. PLEASE PRAY FOR MY FAMILY. I COULD NOT BEAR TO LOSE MY HUSBAND AFTER 22 YEARS TOGETHER. I TRY TO KEEP JACKSON'S MIND ON OTHER THINGS BUT AT TIMES IT IS IMPOSSIBLE. GOTTA GO NOW. I AM VERY TIRED. WILL UPDATE AGAIN SOON.

Friday, March 7, 2003 10:44 PM CST

HELLO EVERYONE. THE WEEKEND IS HERE AGAIN. THANKS TO EVERYONE WHO WISHED ME A HAPPY BIRTHDAY. JACKSON IS DOING GREAT. HE IS STILL VERY MUCH SHORT OF BREATH. THANK GOODNESS THAT PULMONARY APPOINTMENT IS COMING UP SOON.HE IS STILL VERY WORRIED ABOUT DAD. DAD WENT TO SEE THE NEUROLOGIST YESTERDAY AND THE DOC THINKS HE HAD A LIGHT STROKE. HE IS CONCERNED THAT HE MAY HAVE BLOCKAGE SOMEWHERE. HE IS ONLY 48 BUT HEART DISEASE RUNS IN HIS FAMILY. TODAY WE WENT AND HE HAD AN MRI AND AN ECHOCARDIARAM TO CHECK FOR DAMAGE AND BLOCKAGE. I WILL KEEP EVERYONE UPDATED ON HIM. PLEASE PRAY FOR HIM. HOPE EVERYONE HAS A GREAT WEEKEND. WE WON'T BE DOING MUCH OTHER THAN GOING TO THE GRANDBABYS BIRTHDAY PARTY TOMMORROW. SHE WILL BE 3. HAVE A GREAT WEEKEND EVERYONE.

Wednesday, March 5, 2003 11:03 PM CST

HELLO EVERYONE, JUST A QUICK UPDATE ON JACKSON. HE IS STILL DOING GREAT.HOORAY!!!! I CAN'T ASK FOR ANYTHING BETTER.
IT IS STILL RAINING OFF AND ON HERE IN ALABAMA. I DID HAVE TO GET OUT IN IT TODAY AND PAY PROPERTY TAXES. IT WASN'T TOO BAD THOUGH. DAD DIDN'T GET TO GO BACK TO WORK TODAY AFTER ALL. HE IS STILL HAVING DIZZY SPELLS AND NUMBNESS IN HIS LEFT ARM AND LEG. HE GOES TO SEE A NEUROLOGIST TOMMORROW SO EVERYONE SAY A PRAYER THAT IT'S NOTHING. JACKSON IS VERY WORRIED. I AM TOO BUT I'M NOT LETTING ANYONE KNOW IT.(THATS PART OF BEING A MOM I GUESS)
AND OF COURSE TOMMORROW IS MY 40TH BIRTHDAY. I AM TRYING NOT TO BE SAD ABOUT IT. LOL!
ANYWAY I WILL UPDATE AGAIN WHEN I FIND OUT MORE ABOUT WHATS WRONG WITH DAD. AND THANKS FOR TAKING THE TIME TO CHECK ON US.

Tuesday, March 4, 2003 8:38 PM CST

RAIN, RAIN, RAIN!!!! WE ARE GETTING A LITTLE TIRED OF IT.
IT HAS RAINED OFF AND ON FOR A FEW DAYS NOW. JACKSON SAYS HE FEELS LIKE A DUCK. HE IS DOING FINE, THOUGH. HES TIRED OF BEING INSIDE ALL OF THE TIME THOUGH. HE HAS PLAYED ON THE COMPUTER OR NINTENDO OR JUST PICKED ON BIG SIS BECAUSE SHE HAS BEEN OUT FOR MARDI GRAS HOLIDAYS. DAD HAS ALSO BEEN HOME BECAUSE OF TROUBLE WITH HIS INNER EAR. ITS AMAZING HOW DIZZY YOU GET WHEN YOU HAVE EAR TROUBLE. AND THE STUFF THE DOC GAVE HIM JUST MAKES HIM WANT TO SLEEP AND SLEEP. HE IS GOING TO TRY TO GO BACK TO WORK TOMMORROW THOUGH. JACKSON HAS BEEN VERY GLAD THAT DAD HAS BEEN HOME. OTHER THAN THAT THERE ISNT MUCH ELSE GOING ON. I TURN THE BIG "40" ON THURSDAY AND JACKSON HAS MADE FUN OF ME FOR DAYS TELLING ME I AM OLD.
ISN'T HE FUNNY? TAKE CARE AND I WILL UPDATE AGAIN SOON.

Saturday, March 1, 2003 10:03 PM CST

HELLO EVERYONE, NOT MUCH GOING ON HERE IN SOUTHERN ALABAMA.
THATS GOOD. MARDI GRAS IS GOING ON BUT WE DON'T REALLY GO TO ANY PARADES ANYMORE BECAUSE JACKSON CAN'T STAND THE LOUD NOISE.(IT'S OKAY IF HE IS THE ONE MAKING THE LOUD NOISE!)
SO WE ARE JUST HANGING AROUND NOT DOING MUCH. JACKSON IS PLAYING SOME HARLEY DAVIDSON GAME, AND I HAVE BEEN CHECKING ON SOME OF THE KIDS ON CARINGBRIDE. THERE ARE SO MANY TO KEEP UP WITH. HE HAS BEEN FEELING FINE TODAY. NOT MUCH LONGER UNTIL WE GET TO SEE THE NEW PULMONOLGY DOC AND I WILL BE SO GLAD. I DON'T LIKE FOR HIM TO BE OUT OF BREATH LIKE HE IS ALOT OF TIMES AND I HOPE THERE WILL BE SOMETHING THAT CAN HELP HIM. JUST RUNNING DOWN THE HALLWAY PUTS HIM OUT OF BREATH. AND HE ISN'T RUNNING VERY FAST BECAUSE HIS LEG MUSCLES ARE TOO WEAK TO RUN FAST. OTHER THAN THAT HE IS FINE. I PRAY THAT HIS GOOD HEALTH WILL CONTINUE.
NOT MUCH ELSE TO WRITE ABOUT. HOPE EVERYONE HAS A GOOD WEEKEND.

Thursday, February 27, 2003 12:41 AM CST

HELLO EVERYONE, WELL THE RAIN FINALLY STOPPED! WE WERE BEGINNING TO FEEL A LITTLE LIKE DUCKS AROUND HERE! AND NOW TODAY IT IS A LITTLE ON THE COOL SIDE. BUT NOT LIKE SOME OF YOU WITH ALL OF THE SNOW. WE WOULD ENJOY SNOW ONCE IN AWHILE THOUGH. JACKSON IS DOING GOOD. HIS G-TUBE SITE IS STARTING TO GET REALLY RED AGAIN. JACKSON SAYS IT HURTS A LITTLE TOO. I WISH WE COULD GET RID OF THAT THING. I KEEP TRYING TO CONVINCE HIM TO TRY EATING MORE THINGS, BUT WHEN YOUR WHOLE LIFE HAS CONSISTED OF EATING WITH A FEEDING TUBE, IT MAKES IT HARD TO CHANGE. HE HAS NO IDEA WHAT HE IS MISSING BECAUSE HE NEVER HAD IT TO BEGIN WITH. I GUESS HE WILL BE THE ONE TO KNOW WHEN HE IS READY. HIS SINUSES ARE BEHAVING TOO THANKGOODNESS. NOW IM THE ONE WITH THE ALLERGY PROBLEMS. FINALLY HAD TO TAKE AN ALLEGRA, CUZ I COULDN'T TAKE IT ANYMORE. WELL THATS ABOUT IT FOR NOW. THANKS FOR CHECKING IN ON US.

Tuesday, February 25, 2003 2:25 PM CST

HAPPY TUESDAY EVERYONE. NOT MUCH GOING ON HERE. JACKSON'S PHYSICAL THERAPIST JUST LEFT. THEY DID ALOT OF UPPER BODY EXERCISES, SINCE THAT IS WHERE HE IS THE WEAKEST. HIS SINUSES STARTED ACTING UP AGAIN THIS MORNING, BUT THEN JUST STOPPED. IT HAS TO BE THE POLLEN IN THE AIR. AND IT ISN'T EVEN SPRING YET!!
HE RODE AROUND THE YARD ON THE RIDING LAWNMOWER EARLIER(THATS HIS VERSION OF A 4-WHEELER) HE WANTS ONE REAL BAD. MAYBE ONE DAY. NOW HE IS DOING SOME ART STUFF AND WAITING ON MAWMAW AND PAWPAW TO COME HOME SO THAT WE CAN GO DOWN THERE FOR OUR DAILY VISIT. NOT MUCH ELSE GOING ON SO I WILL UPDATE AGAIN SOON.

Sunday, February 23, 2003 7:59 PM CST

HELLO EVERYBODY. HOPE THE WEEKEND WAS ENJOYABLE FOR EVERYBODY. JACKSON HAD A PRETTY GOOD WEEKEND. WE HAD THE GRANDBABY THE ENTIRE WEEKEND. IT WAS UGLY YESTERDAY BECAUSE OF THE RAIN, BUT THEY DID PLAY WITH CARS AND WATCH TV. OF COURSE THE GRANDBABY HAD TO PLUNDER THE ENTIRE TIME SHE WAS HERE. I HAVE ALL SORTS OF GRAFFITTI ON THE WALLS BECAUSE OF CRAYONS AND PENCILS. NOT TO MENTION SHE EMPTIED THE ENTIRE CONTAINER OF SALT OUT UNDERNEATH THE TABLE. TODDLERS! GOTTA LUV EM! OH WELL I CAN THINK OF MANY MORE IMPORTANT THINGS TO WORRY ABOUT. JACKSON IS DOING GREAT. HE HAD MORE SINUS PROBLEMS THIS MORNING BUT THANKFULLY THEY STOPPED DRAINING AGAIN. I HOPE THIS IS ONLY ALLERGY RELATED. TOMMORROW IS SCHOOL SO HE IS TRYING TO GET PREPARED FOR THAT. NEXT WEEK WILL BE SHORT DUE TO MARDI GRAS HOLIDAYS. MARDI GRAS IS SO MUCH FUN, BUT JACKSON DOESN'T LIKE TO GO BECAUSE THE PARADES ARE SO LOUD AND FOR SOME REASON HE HAS NEVER BEEN ABLE TO TOLERATE LOUD NOISES. WELL GOTTA GO. I WILL UPDATE AGAIN SOON.

Friday, February 21, 2003 9:51 PM CST

HELLO EVERYONE. WELL FRIDAY NIGHT IS ALMOST OVER WITH. IT HAS BEEN A LONG DAY TODAY. WE HAD TO RUN ERRANDS IN THE RAIN. IT HAS RAINED THE ENTIRE DAY AND SUPPOSE TO RAIN TONIGHT TOO. ANYWAY, WE WENT BY AND GOT THE GRANDBABY TO SPEND THE NIGHT TONIGHT. JACKSON IS ON THE COMPUTER AND OF COURSE SHE IS WATCHING RUGRATS. SHE WILL BE 3 YRS OLD 2 WEEKS FROM TOMMORROW. NEEDLESS TO SAY JACKSON IS GLAD THAT HE WILL HAVE SOME COMPANY. HE IS FEELING GOOD TODAY. STILL GOT THE SHORT OF BREATH THING, BUT THEN HE WAS EVEN SHORT OF BREATH WHEN HE WAS A BABY. CAN'T WAIT UNTIL WE GO SEE THE NEW LUNG DOCTOR THOUGH. YESTERDAY HIS SINUSES WERE MESSING UP REALLY BAD, BUT THANKFULLY THEY GOT BETTER. WELL THATS ABOUT IT FOR NOW. DON'T FORGET TO SIGN THE GUEST BOOK.

Wednesday, February 19, 2003 1:38 PM CST

HELLO EVERYONE. SORRY I DIDN'T UPDATE YESTERDAY AFTER THE APPOINTMENT, BUT I WAS KINDA TIRED. WE DIDN'T LEARN ALOT YESTERDAY ANYWAY. THE GI DOC SAID THE HERNIA MAY OR MAY NOT BE CAUSING HIM TO BE SHORT OF BREATH. HE SAID THAT AS LONG AS HE ISN'T HAVING ANY REFLUX THAN THAT MEANS THE NISSAN IS HOLDING. GOOD THING. HE SAID IF I COULD GET JACKSON TO START SWALLOWING PILLS THAN HE COULD INCREASE HIS PRILOSEC OR CHANGE TO SOMETHING DIFFERENT. FAT CHANCE OF THAT! HE SAID THE SHORTNESS OF BREATH MAY BE DUE TO ASTHSMA. SO I GUESS WE WILL JUST WAIT AND SEE WHAT THE NEW LUNG DOC SAYS IN MARCH. OTHER THAN THAT HE IS OKAY. I SHAVED HIS HAIR LAST NIGHT SO NOW HE LOOKS LIKE DAD. HE SAYS IT FEELS SO MUCH BETTER! THANKS EVERYONE FOR LOOKING IN ON US.

Monday, February 17, 2003 11:26 AM CST

HELLO EVERYONE, HAPPY MONDAY. WELL ITS GOTTEN COLD HERE IN SOUTHERN ALABAMA AGAIN. WHAT A DRAG! JACKSON DID PLAY OUTSIDE ALOT YESTERDAY WITH HIS COUSINS THOUGH. HE WORE HIMSELF OUT PRETTY GOOD. HE IS STILL FEELING GOOD AND I AM SO GLAD.TOMMORROW IS OUR APPOINTMENT WITH THE GI DOC. HE ALSO WANTED ME TO TELL THAT HE GOT A NEW GAME FOR HIS PC. ITS ABOUT SNOWBOARDING. HE WANTS TO SEE SOME SNOW REALLY BAD. MAYBE NEXT YEAR. WELL EVERYONE TAKE CARE AND I WILL UPDATE AFTER THE APPOINTMENT TOMMORROW.
AND DON'T FORGET TO LOOK AT THE NEW PICTURES IN THE ALBUM.

Saturday, February 15, 2003 11:31 AM CST

Hello everyone and happy saturday! DON'T FORGET TO LOOK AT THE NEW PICTURES in the photo album. And thanks Chris for getting my page fixed! I am not too bright when it comes to web pages, but I am learning. Nothing much going on here. It will be in the 70's again today and we are loving it. Jackson got on the riding lawn mower and rode all over the yard last night until it got dark. He is definitely loving this weather. He is feeling pretty good too. He was out of breath alot last night for some reason. We have an appointment on tuesday with the gastrointernists to find out if his hernia is adding to his problems. Well everyone have a great weekend and will update soon.

Friday, February 14, 2003 10:54 PM CST

HELLO EVERYONE. I FINALLY HAVE NEW PHOTOS IN THE ALBUM, SO PLEASE CHECK THEM OUT. PARDON THE LOOK OF THE PAGE BUT I HAVE HAD SOME TROUBLE EDITING SINCE CARINGBRIDGE HAS CHANGED THEIR LOOK. I WILL HAVE TO HAVE SOME HELP FROM GOOCH'S MOM. AGAIN! ANYWAY, JACKSON HAD A GREAT VALENTINE'S
DAY. HE MADE THE CUTEST VALENTINE FOR ME AND DAD. I HAD TO LEAVE THE ROOM SO HE WOULDNT SEE ME CRY. ANYWAY I WILL UPDATE AGAIN TOMMORROW.

Friday, February 14, 2003 6:32 AM CST

HAPPY VALENTINE'S DAY EVERYONE!!!!
I HOPE EVERYBODY HAS A VERY HAPPY ONE. JACKSON DID ALL OF HIS VALENTINE'S LAST NIGHT. HE DID 6 FOR HIS COUSIN CHRISTINA. HE WENT A LITTLE OVERBOARD, HUH? WE WENT TO HIS OLDER SISTER NICOLE'S HOUSE YESTERDAY AND GAVE HER AND THE GRANDBABY THEIR VALENTINE'S. MY GRAND-DAUGHTER WAS MORE WORRIED ABOUT HER "CHOCKY" (BABY TRANSLATION- CHOCOLATE) THAN THE STUFFED BEAR I GOT HER. OH WELL..... DAD GOT A NEW PAIR OF JEANS AND A PICTURE OF JACKSON AND HIM TOGETHER.
GUESS I HAVE TO WAIT TIL TONIGHT TO FIND OUT WHAT I GET.
YESTERDAY WE WENT AND GOT JACKSON'S PORT FLUSHED. AND OF COURSE HE SCREAMED AND YELLED. I TOLD HIM THE EMLA CREAM FOR NUMBING MUST NOT WORK IF HE YELLS THAT MUCH. HE SAYS HE IS JUST SCARED. AFTER 4 YEARS I WOULD THINK HE WOULD BE A LITTLE MORE USE TO IT. GUESS NOT THOUGH. THE TEACHER COMES TODAY AND THEY WILL BE MAKING VALENTINE'S.
HAVE A HAPPY DAY AND WILL UPDATE AGAIN SOON.

Wednesday, February 12, 2003 1:31 PM CST

HELLO EVERYONE. SORRY I HAVEN'T UPDATED IN A FEW DAYS, BUT IT HAS BEEN KINDA BUSY AROUND HERE. WELL JACKSON'S SISTER BRANDY IS FINALLY STARTING TO FEEL BETTER. SHE WENT TO THE DOCTOR ON MONDAY AND THEY GAVE HER AN ANTIBIOTIC AND COUGH MEDICINE. SHE WENT BACK TO SCHOOL TODAY. SO FAR JACKSON HASN'T GOT IT. PLEASE SAY AN EXTRA PRAYER THAT HE WON'T. HE IS DOING REALLY WELL RIGHT NOW AND I AM SO GLAD. THE WEATHER IS REALLY NICE TOO SO HE IS ABLE TO GET OUTSIDE A LITTLE MORE. I FINALLY GOT SOME NEW PICTURES AND I HOPE TO PUT THEM ON THE PAGE IN THE NEXT DAY OR SO. THE COMPUTER THAT JACKSON STAYS ON IS THE ONE WITH THE SCANNER SO I HAVE TO WAIT UNTIL HE GETS TIRED OF PLAYING TO DO ANYTHING REALLY IMPORTANT! TODAY HE GOT HIS CUPID PACKAGE IN MAIL AND HE WAS SOOOOO HAPPY. EVEN M0M GOT SOME CHOCOLATES(NOT THAT MOM NEEDS ANY ACCORDING TO DAD!!) WELL TAKE CARE AND IF I DONT POST BEFORE FRIDAY I HOPE EVERYONE HAS A WONDERFUL VALENTINES DAY.

Sunday, February 9, 2003 10:37 AM CST

Hello everyone and happy Sunday. Jackson is already in there on the computer playing a new game that he got yesterday. The problem with him is that he gets a new game and in 3 or 4 days he has beaten it! He is so smart. I think one day he may have a job with computers. He is feeling great, thankgoodness. His sister Brandy is sick with fever sore throat and cough. Please pray that Jackson won't get it. Last Valentines day he was in the hospital with pneumonia, and I sure don't want to be there. Dad got Jackson a new horse too. Her name is SPARKLES and she is going to have a baby horse in april sometime. That should be an experience for us. And Jackson says that if it is a boy his name will be SPIRIT. That wasn't a surprise since he just loves horses and that movie too. Anyway she is very pretty and Quinn(his other horse) just keeps staring at her wondering why she came. Anyway that is about all. I should have some new pics up soon. They are at walmart's as I type. Please keep Jackson in your prayers and say a prayer for Brandy that she will feel better soon.

Friday, February 7, 2003 12:51 AM CST

Hello all. Well the weekend is almost here. Jackson just got through with school. He did great. He gave an oral presentation on his alabama history project and got an A. Yoohoo!!! He has worked real hard on that project. Other than that there isn't much else going on. His sinuses are messing up a little, but what is new. His last 2 ponies left yesterday going to Kentucky to disabled children. Now he has only his big horse Quinn, who is very lonely now. He got his horse through PERSONALPONIES.ORG. They find ponies for kids with illnesses for them to love and take care of. Dad and I are community directors for our area. Another pair went to a little girl in Tennessee just in time for santa claus. I wish I could've been there to see her joy. Anyway, the grandbaby is spending the night tonight so Jackson will have someone to play with. Take care and will update again soon.

Wednesday, February 5, 2003 12:58 AM CST

Hello everyone. Hope your week is going good so far. Jackson is eating lunch and watching tv. He has developed a taste for LUNCHABLES right now. Whatever as long as he eats. He is doing pretty good right now. We have an appointment to see his gastrointernist on Feb 18 to see about his hernia. Then we go back to neurology clinic on march 21st and see the new lung doc on march 31st. I hope I can keep track of all these appointments. I remember when he use to have 2 or 3 a week when he was a baby! Anyway he has been planning what he wants to do for his birthday this year(he has until june) I have heard of every option that a little boy could come up with. Anyway take care and I will update again soon.

Saturday, February 1, 2003 9:58 PM CST

Hello everyone, happy Saturday. Well Jackson got an earlier visit to one of his pediatricians yesterday. He says that the out of breath thing may or may not be from his hiatal hernia. It can cause syptoms like that, but his underlining medical problems(his muscle disease of unknown origin) may be some of it too. Anyway, the doc wants him to go see his gastrointernologist and see if he wants to do any test to see about the hernia. Will keep you posted. Dad worked in Mississippi today, so we went to maw maws and spent the afternoon. It was a beautiful day and in the 60's. A very nice change. Today was also a sad day because of the loss of the astronauts on the shuttle. My heart goes out to the families. Please keep the family of Garrett S. in your prayers too because of his recent passing. Hope your weekend is good.

Thursday, January 30, 2003 at 02:28 PM (CST)

Hello everyone and happy Thursday. Jackson has finally got an appointment to see the new pulmonologist in Pensacola. Its on March 31st. Don't it make you wonder why he couldn't have one sooner? The sweat chloride test came back negative for cystic fibrosis. We knew it would since he has already had it done 3 times! Some doctors just think they have to have their own results instead of someone elses. He has an appointment next friday to see one of his pediatricians about his increased shortness of breath. But since he has a Hiatal Hernia, I am thinking maybe that is causing him some problems, not that they will fix it I'm sure. He is lucky to have 2 pediatricians. They are husband and wife, and she is expecting their first child on Feb 9. How exciting! Anyway, not much else going on. Had to get the new car tags today and then went by dads office. That really made Jackson happy. And then we went through the drive-thru and Mcdonalds and got a happy meal. We haven't done that in a long time. Jackson has had a good day.
Tommorrow is FUN FRIDAY and when the teacher comes they are going to have snacks and watch a video. The teacher does this for him on the last friday of each month, and boy does he look forward to it! Thanks for the happy mail.

Monday, January 27, 2003 at 06:23 AM (CST)

HAPPY MONDAY EVERYONE. HOPE THE WEEKEND WAS GOOD. OURS WAS OKAY. STILL COLD. THE GRANDBABY SPENT THE NIGHT FRIDAY NIGHT, AND JACKSON WAS SO GLAD TO HAVE SOMEONE. HE HAD A REALLY BAD DAY FRIDAY FOR SOME REASON. HE HAS BEEN STUCK INSIDE SO MUCH LATELY AND HE NEVER HAS ANYONE TO PLAY WITH. AND DAD HAS BEEN WORKING SO MUCH OVERTIME LATELY THAT HE HAS HAD NO ONE BUT ME. APPARENTLY HE WAS JUST REAL DEPRESSED FRIDAY AND BROKE DOWN CRYING FRIDAY NIGHT ABOUT IT. POOR BABY COULDNT EVEN CATCH HIS BREATH HE WAS CRYING SO HARD. MY HEART GOES OUT TO HIM. SO DAD TOOK THE WHOLE DAY SUNDAY AND SPENT WITH JUST HIM AND JACKSON. THEY DROVE AROUND LOOKING FOR 22 RIFLE SHELLS(JACKSON HAS BEEN BEGGING DAD TO LET HIM SHOOT THIS GUN IN TARGET PRACTICE). AND OF COURSE JACKSON COULDNT TOTALLY DITCH ME, BECAUSE HE CALLED ME THREE TIMES ON MY CELL PHONE!!! ANYWAY JACKSON DID THE HIT TARGET DAD SET UP FOR HIM, ONCE. HAVE A GOOD WEEK.

Thursday, January 23, 2003 at 10:10 PM (CST)

HELLO EVERYONE. WELL IT IS GOING TO BE A VERY COLD NIGHT HERE IN SOUTHERN ALABAMA. IT IS GOING DOWN TO 10 DEGREES!
THAT JUST DOESN'T HAPPEN TOO OFTEN HERE IN OUR PART OF ALABAMA. JACKSON AND HIS SISTER WERE BOTH HOPING THEY WOULD CALL OFF SCHOOL FOR TOMMORROW. FAT CHANCE. AT LEAST IT IS ALMOST FRIDAY. THE GRAND-BABY IS SPENDING THE NIGHT WITH US TOMMORROW NIGHT AND JACKSON IS VERY EXCITED. IT AT LEAST GIVES HIM SOMEONE TO PLAY WITH. AND SHE IS ALMOST 3, SO SHE IS A LITTLE FUN HE SAYS. HE IS DOING FINE. I THINK I AM GOING TO SEE ABOUT GETTING HIM AN APPOINTMENT WITH HIS PEDIATRICIAN NEXT WEEK. I HAVE BEEN WONDERING IF HIS HIATAL HERNIA IS WHAT IS CAUSING HIM TO BE MORE SHORT OF BREATH AT TIMES. HE SEEMS FINE WHEN HE IS SLEEPING. I WAS RESEARCHING IT A LITTLE AND FOUND THAT IT CAN CAUSE SHORTNESS OF BREATH. AND THEY DID DISCOVER THE HERNIA LAST MARCH. IF IT IS THE CASE I THINK THEY SHOULD CONSIDER TAKING IT OUT. I WILL KEEP EVERYONE UPDATED ON WHAT I FIND OUT.

Tuesday, January 21, 2003 at 09:22 PM (CST)

HELLO EVERYONE. HAPPY TUESDAY. NOTHING MUCH GOING ON HERE IN ALABAMA. JACKSON IS WATCHING THE DISNEY CHANNEL AND EATING RICE FOR SUPPER. HE IS STILL FEELING GOOD. TODAY WE HAD TO TAKE HIS SISTER BRANDY TO THE DOCTOR BECAUSE SHE HAS BEEN HAVING REALLY BAD MIGRAINES. THEY PUT HER ON A MUSCLE RELAXER AND A MIGRAINE MEDICINE. SHE HAS TO GO BACK TO THE DOCTOR IN 2 WEEKS. SO EVERYONE PLEASE SAY AN EXTRA PRAYER THAT SHE WILL BE FEELING BETTER SOON. OTHER THAN THAT THERE ISN'T MUCH GOING ON. JACKSON'S TEACHER COMES TOMMORROW. EVERYONE TAKE CARE AND I WILL UPDATE AGAIN SOON.

Sunday, January 19, 2003 at 10:18 AM (CST)

HELLO EVERYONE. HOPE YOUR WEEKEND IS GOOD. IT HAS BEEN SO COLD HERE IN SOUTH ALABAMA, THAT WE HAVE STAYED INSIDE EXCEPT FOR ME HAVING TO FEED THE HORSES. OR HANG THE CLOTHES ON THE LINE. DAD IS STILL TRYING TO FIND ME A DRYER AFTER THE LAST ONE DECIDED TO GIVE OUT. JACKSON IS DOING GREAT OTHER THAN BEING A LITTLE BORED THIS WEEKEND. DAD HAS BEEN WORKING IN MISSISSIPPI THE WHOLE WEEKEND, AND SISTER BRANDY WENT OFF TO THE HUNTING CAMP WITH BOYFRIEND AND FAMILY. HE ACTUALLY CRIED WHEN SHE LEFT. AND OF COURSE MAWMAW WAS GONE ALL DAY WITH A FRIEND, SO WE DIDNT EVEN GET TO GO DOWN THERE. IN FACT WE BOTH STAYED IN OUR PJS ALL DAY LONG.(ITS NOT LIKE WE HAD ANY PRESSING ENGAGEMENTS) LOL!
TODAY PROMISES TO BE BETTER. AND THERE IS NO SCHOOL TOMMORROW FOR MLK DAY, SO HE WILL HAVE BRANDY ALL DAY TO TORMENT! WELL TAKE CARE AND THANKS FOR THE HAPPY MAIL.

Wednesday, January 15, 2003 at 05:10 PM (CST)

HAPPY WEDNESDAY EVERYONE!
SORRY I HAVEN'T UPDATED IN A FEW DAYS,BUT THERE REALLY HASN'T BEEN ALOT TO UPDATE ABOUT.(THATS GOOD!) JACKSON IS DOING FINE. RIGHT NOW HE IS EATING FRITOS AND WATCHING TV.
A FRIEND OF HIS IN CALIFORNIA SENT HIM A SPECIAL PACKAGE TODAY. IT IS HIS VERY OWN PERSONAL SIGN LANGUAGE KIT. HE HAS BEEN WANTING TO LEARN TO SIGN, SO GUESS WE WILL START LEARNING. THANKS SO MUCH DAVID!!!! WE WENT ON TUESDAY TO GET HIS PORT FLUSHED. WE ALL KNOW WHAT AN EXPERIANCE THAT IS. TODAY WE WENT AND HAD A SWEAT CHLORIDE TEST DONE(FOR CYSTIC FIBROSIS) THIS IS THE THIRD ONE. THEY ALL COME BACK THE SAME, BUT THIS NEW PULMONARY DOC WE ARE FIXING TO START USING WANTS HIS OWN COPY. SO OF COURSE WE RAN INTO ALOT OF FRIENDS AT THE HOSPITAL. WE HUNG OUT WITH MR. RICHARD IN RADIOLOGY FOR AWHILE. OTHER THAN THAT NOT MUCH ELSE GOING ON. I DID HURT MY BACK SOMEHOW ON SATURDAY AND HAVE BEEN IN TREMENDOUS PAIN. IF NOT BETTER MAY TRY TO GO TO THE DOC ON FRIDAY. POOR JACKSON IS SO WORRIED THAT I AM GONNA DIE. POOR BABY. EVERYONE THANKS FOR STOPPING BY AND WE APPRECIATE THE HAPPY MAIL.

Friday, January 10, 2003 at 10:31 PM (CST)

HELLO EVERYONE. WELL IT IS FRIDAY AGAIN. ITS ALMOST TIME TO TURN IN FOR THE NIGHT. JACKSON AND I STAYED UP WAY TOO LATE LAST NIGHT. I WAS SIGNING SOME OF THE KIDS GUESTS BOOKS. ITS AMAZING HOW MANY CHILDREN WHOSE WEB PAGES I RUN ACROSS THAT ARE SICK WITH SOME TYPE OF DISEASE. MY HEART BREAKS FOR ALL OF THESE FAMILIES. I AM SO THANKFUL FOR JACKSON. I DON'T KNOW WHAT OUR FUTURE MAY HOLD BUT I WILL ALWAYS BE THANKFUL FOR HIM. HE HAS ALWAYS BEEN SUCH A BRAVE LITTLE BOY EVEN WHEN MOM WASN'T. HE GOES TO SEE HIS NURSE ON TUESDAY FOR A PORT FLUSH. I WISH I COULD SAY HE WAS BRAVE ABOUT THAT, BUT HE CANNOT STAND A NEEDLE AT ALL. THATS ONE REASON WHY I DECIDED AGAINST THE ALLERGY SHOTS. I COULDN'T MAKE HIM ENDURE SHOTS TWICE A WEEK FOR 3 TO 5 YEARS NOT AFTER EVERYTHING HE HAS ALREADY BEEN THROUGH. AND IT WOULD HAVE TOOK AT LEAST 5 YEARS FOR THEM TO WORK. HECK, HE MIGHT OUTGROW THOSE BY THEN!! ANYWAY, HE IS DOING FANTASTIC RIGHT NOW. JUST THE SAME THINGS GOING ON LIKE ALWAYS. HIS SHORTNESS OF BREATH, LEG PAINS,ETC....
HOPEFULLY NEXT WEEK WE WILL GET THE REFERRAL FOR THE NEW LUNG DOC IN PENSACOLA.

Wednesday, January 08, 2003 at 11:23 AM (CST)

HELLO EVERYONE, SORRY I HAVEN'T UPDATED LATELY. JACKSON IS DOING FINE. HIS TEACHER IS HERE NOW AND THEY ARE LEARNING ABOUT ALABAMA HISTORY. HE LOVES HISTORY. GUESS HE GOT THAT FROM ME. I AM A BIG HISTORY BUFF. ESPECIALLY ABOUT THE CIVIL WAR. ANYHOW...... HIS PHYSICAL THERAPIST CAME YESTERDAY AND HE RODE HIS BIKE FOR HER. SHE NOTICED THAT HIS LEGS SEEMED ALOT MORE TIRED THAN USUAL. I THINK BECAUSE HE WENT A FEW DAYS WITHOUT RIDING HIS BIKE. I HAVE BEEN TAKING SOME NEW PICS OF HIM SO HOPEFULLY SOON I WILL HAVE SOME UP ON HIS SITE.

Friday, January 03, 2003 at 09:30 PM (CST)

HELLO EVERYONE. WELL IT IS THE WEEKEND AGAIN. IT HAS TURNED COLD HERE IN LOWER ALABAMA. IT IS SUPPOSED TO BE IN THE MID 20S TONIGHT. BRRRRRR JACKSON IS DOING GREAT. HE ACTUALLY TRIED SOME PIZZA TONIGHT. HOORAY!!!! HE GOT A LITTLE CHOKED
THOUGH AND DIDN'T WANT TO FINISH IT. BUT I WAS STILL PROUD THAT HE TRIED. SOME TEXTURES OF FOOD HE JUST CAN'T SEEM TO HANDLE. BUT AT LEAST HE TRIES. SCHOOL STARTS AGAIN ON MONDAY, SO THE TEACHER WILL BE HERE BRIGHT AND EARLY. HE IS DREADING IT. I THINK ALL OF THE KIDS ARE DREADING GOING BACK TO SCHOOL. HOPE EVERYONE HAS A GOOD WEEKEND.

Wednesday, January 01, 2003 at 01:08 PM (CST)

HELLO EVERYONE AND HAPPY NEW YEAR!!!!
ME, JACKSON AND SISTER BRANDY BROUGHT IN THE NEW YEAR BY WATCHING "HALLOWEEN RESURRECTION". JACKSON JUST LOVES THOSE HALLOWEEN MOVIES. HIS HEALTH CONTINUES TO BE GOOD. THANK GOODNESS. HE IS LOOKING FORWARD TO EATING HIS BLACK-EYED PEAS TODAY. AND RICE AND CORNBREAD. ALL 3 OF HIS FAVORITE THINGS TO EAT! TODAY IS THE LAST DAY OF DADS VACATION SO HE IS KINDA SAD ABOUT THAT. HIS SISTER DOESN'T GO BACK TO SCHOOL UNTIL MONDAY. HE GETS VERY LONELY AND THERE ISN'T A THING I CAN DO ABOUT IT.
TAKE CARE AND I WILL UPDATE AGAIN SOON.

Saturday, December 28, 2002 at 09:41 PM (CST)

HELLO EVERYONE. HOPE EVERYONE HAD A NICE CHRISTMAS. MY THOUGHTS AND PRAYERS ARE WITH THE FAMILY OF JUSTIN B. IN THEIR TIME OF SORROW.HE WAS A VERY BRAVE LITTLE MAN.
I HAVEN'T UPDATED IN A FEW DAYS. JACKSON GOT LOTS OF TOYS SO HE HAS BEEN VERY BUSY. HE GOT ANOTHER BICYCLE FOR CHRISTMAS, BUT HE ISN'T QUITE TALL ENOUGHT YET SO I HAVE BEEN RIDING THE NEW ONE WHILE HE RIDES THE OLD ONE. HE IS ENJOYING THAT ALOT. HE IS DOING WELL HEALTH WISE. HIS G-TUBE IS ALL CLEARED UP NOW. I AM STILL CALLING THE SURGEON NEXT WEEK THOUGH TO GET A NEW ONE. I HOPE EVERYONE LIKES THE NEW PAGE, I AM STILL TRYING TO LEARN ABOUT HTML.
WILL UPDATE AGAIN SOON.

Saturday, December 21, 2002 at 09:37 AM (CST)

HELLO EVERYONE. WELL IT IS ALMOST CHRISTMAS, AND I KNOW THAT ALL OF THE CHILDREN ARE GETTING EXCITED. I WILL SAY AN EXTRA PRAYER FOR THOSE THAT ARE SPENDING IT IN THE HOSPITAL.(WE HAVE DONE THAT ON A FEW OCCASIONS, NOT TO MENTION WE HAVE BEEN IN ON EVERY HOLIDAY THAT YOU CAN THINK OF) I REMEMBER THE FIRST 3 MOTHERS DAYS I HAD AFTER JACKSON WAS BORN WAS SPENT IN THE HOSPITAL. THAT IS WHY WHEN IT GETS CLOSE TO A HOLIDAY HIS DOCTORS AND NURSES START TELLING HIM TO STAY WELL. ANYWAY, I WANT TO THANK CHRIS RUSSO(GOOCH'S MOM) FOR DRESSING UP HIS CARINGBRIDGE PAGE. I AM TRYING TO LEARN HTML, BUT IT ISN'T EASY. JACKSON SAYS HELLO AND TO TELL EVERYONE THAT SANTA E-MAILED HIM BACK. TALK ABOUT TECHNOLOGY! HE IS FEELING GREAT AND HIS G-TUBE INFECTION SEEMS TO BE CLEARING UP. HE HASN'T GOT TO RIDE HIS BIKE BECAUSE IT IS FALLING APART HE SAYS. HE ASKED SANTA FOR A NEW ONE. ANYWAY HAVE A GREAT WEEKEND WE WILL BE DOING SOME HOLIDAY BAKING. MORE SOON....

Thursday, December 19, 2002 at 11:06 AM (CST)

HELLO EVERYONE. WE JUST GOT BACK FROM SEEING JACKSON'S ALLERGIST. HE STARTS HIS IMMUNOTHERAPHY SHOTS IN 1 OR 2 WEEKS. I AM NOT LOOKING FORWARD TO THAT. SHE SAYS THAT HE REALLY NEEDS TO BE SEEING A PULMONOLOGIST(DUH) THE ONLY PROBLEM IS THAT THERE IS ONLY ONE PEDIATRIC LUNG DOC HERE IN MOBILE. AND THAT ONE I FIRED A COUPLE OF MONTHS AGO. SO WE EITHER GO UP TO UAB IN BIRMINGHAM, WHICH TAKES ABOUT 4 HOURS OR GO TO PENSACOLA, FLORIDA WHICH IS AN HOUR AWAY. I OPT FOR PENSACOLA IF MEDICAID WILL ALLOW IT. I WILL HAVE TO CHECK INTO THAT. OTHERWISE HE IS DOING OKAY. HE STILL HAS A LITTLE COUGH LEFT OVER FROM THE PNEUMONIA, BUT THAT IS USUALLY JUST AT NIGHT. HE IS STILL WAITING ON CHRISTMAS TO HURRY AND GET HERE. EVERY NIGHT HE MARKS OFF ANOTHER DAY ON THE CALENDAR.

Wednesday, December 18, 2002 at 06:26 AM (CST)

HAPPY WEDNESDAY EVERYONE. WELL, ITS GETTING CLOSER AND CLOSER TO CHRISTMAS. JACKSON CAN HARDLY CONTAIN HIS EXCITEMENT! YESTERDAY HE EVEN GOT A LETTER IN MAIL FROM SANTA CLAUS. I LOVE ALL OF THOSE PEOPLE FROM HUGSANDHOPE. IT REALLY MADE JACKSON'S DAY TO GET A LETTER FROM SANTA. WE NEVER GET TO TAKE HIM TO THE MALL HERE TO SEE SANTA AND OF COURSE SINCE HE DOESN'T GO TO SCHOOL IN A SCHOOL SETTING HE NEVER GETS TO HAVE A PIC MADE WITH SANTA.
HE IS BASICALY OVER HIS PNEUMONIA THANK GOODNESS. HIS G-BUTTON IS WHAT CONCERNS ME NOW. IT IS VERY VERY IRRITATED. THIS IS DAY 2 OF AN ANTIBIOTIC FOR THAT, SO WE'LL SEE. I FINALLY HEARD FROM THE PULMONOLOGISTS IN BIRMINGHAM. THEY ARE SUPPOSED TO BE CALLING ME BACK WITH THE RESULTS OF HIS PULMONARY FUNCTION TESTS. TOOK THEM LONG ENOUGH TO REMEMBER US!! TOMMORROW HE SEES HIS ALLERGISTS AND I WILL UPDATE AGAIN THEN.

Tuesday, December 17, 2002 at 06:49 AM (CST)

HELLO EVERYONE.JACKSON WENT TO SEE HIS PEDIATRICIAN YESTERDAY. SHE SAID HE WAS DEFINITELY MOVING MORE AIR IN HIS LUNGS THIS WEEK AS COMPARED TO LAST WEEK WITH THE PNEUMONIA. HIS NOSE IS STILL A LITTLE MESSED UP SO SHE GAVE HIM A DECONGESTANT. AND OF COURSE HIS G-BUTTON IS VERY RED AND IRRITATED. SO OF COURSE ANOTHER ANTIBIOTIC FOR 10 DAYS. HE WILL DEFINITELY HAVE TO SEE DR.POWELL (SURGEON) AFTER CHRISTMAS. OTHER THAN THAT HE IS DOING GREAT. WAITING ON SANTA AND COUNTING DOWN THE DAYS. HE RECEIVED AN INVITATION IN MAIL YESTERDAY FROM THE HOSPITAL TO RIDE IN THE CHRISTMAS PARADE DOWNTOWN. THEY WILL HAVE A SNOWFLAKE FLOAT AND BECAUSE HE IS A REGULAR AT THE HOSPITAL, BRENDA (CHILD LIFE SPECIALIST AT THE HOSPITAL) THEY WANT TO INCLUDE HIM.
BUT OF COURSE I WILL HAVE TO DECLINE, BECAUSE OF THE RISK INVOLVED. IT IS WAY TOO CLOSE TO CHRISTMAS TO CHANCE ANYTHING. HE WAS EXCITED TO JUST BE ASKED. TAKE CARE AND WILL UPDATE AGAIN SOON. THANKS FOR THAT HAPPY MAIL!!

Sunday, December 15, 2002 at 10:22 PM (CST)

HELLO EVERYONE. HOPE YOUR SUNDAY HAS BEEN GOOD. OURS WAS JUST FINE. WE FINALLY GOT THE CHRISTMAS TREE UP. IT IS VERY PRETTY. JACKSON IS DOING GREAT. HE SPENT MOST OF TODAY DOWN AT MAWMAW AND PAWPAWS HELPING DADDY BUILD A BOOKCASE. HIM AND MAWMAW WENT IN THE WOODS LOOKING FOR DEER. HE ENJOYED THE DAY VERY MUCH, AND IT FELT KINDA STRANGE NOT TO HAVE HIM UNDER FOOT ALL DAY LONG. EVEN MOM NEEDS A BREAK SOMETIMES. HE IS THROUGH WITH ALL IV MEDICINE, AND I PULLED THE NEEDLE THIS EVENING. HE SAID IT FELT GREAT NOT TO HAVE A LONG IV TAGGING ALONG EVERYWHERE HE WENT. HE GOES FOR HIS FOLLOW UP VISIT WITH HIS PEDIATRICIAN TOMMORROW. WILL UPDATE THEN ON HOW SHE THINKS HE IS DOING. THANKS FOR THE HAPPY MAIL.

Saturday, December 14, 2002 at 10:40 PM (CST)

HELLO EVERYONE. HOPE EVERYONES WEEKEND IS GOING GOOD. JACKSON IS DOING BETTER EACH DAY THAT PASSES. HE IS GETTING HIS LAST DOSE OF IV ANTIBIOTICS RIGHT NOW, SO TOMMORROW WE GET TO PULL THE NEEDLE OUT. I WILL BE GLAD FOR IT TO COME OUT. OF COURSE HE WILL BE DREADING IT. HE DID GREAT IN SCHOOL YESTERDAY. HE MADE 100 ON HIS SPELLING TEST. HOORAY FOR HIM. WE ARE VERY PROUD OF HIM FOR THAT.HE IS NOW OUT OF SCHOOL UNTIL THE NEW YEAR. WELL TAKE CARE AND THANKS FOR DROPPING BY.

Friday, December 13, 2002 at 02:46 PM (CST)

HAPPY FRIDAY 13TH EVERYONE. JACKSON IS DOING FANTASTIC!!!!
HE HASN'T HAD ANY FEVER AND HIS COUGH IS ALMOST GONE. GOD IS GOOD. NOW IF WE CAN JUST MAKE IT THROUGH CHRISTMAS. HE IS GETTING SO EXCITED. WE HAVE A TREE NOW SO WE WILL DECORATE TONIGHT OR TOMMORROW. MOM IS A LITTLE TIRED AFTER DEALING WITH A WALMARTS CHRISTMAS LAYAWAY THIS MORNING. HE HAD HIS LAST DAY OF SCHOOL TODAY AND THEY MADE PRESENTS FOR DAD. HE MADE MINE WHILE HE WAS IN THE HOSPITAL. THEY HAVE SOME WONDERFUL TEACHERS AT THE HOSPITAL. ITS PRETTY CHILLY HERE IN ALABAMA SO HE HASN'T BEEN OUTSIDE ALOT. THANKYOU FOR KEEPING MY FAMILY IN YOUR PRAYERS.

Thursday, December 12, 2002 at 06:23 AM (CST)

HAPPY THURSDAY EVERYONE. I THINK JACKSON IS FINALLY TRYING TO RECOVER FROM HIS BOUT OF PNEUMONIA. WE SLEPT WITHOUT THE BI-PAP FOR THE FIRST TIME SINCE BEING SICK LAST NIGHT. NEEDLESS TO SAY HE WAS VERY EXCITED. HOPEFULLY HE WILL CONTINUE TO IMPROVE. HE GOES BACK FOR A FOLLOW UP VISIT WITH HIS PEDIATRICIAN ON MONDAY. THEN ON THURSDAY HE GOES TO SEE HIS ALLERGY DOCTOR TO SET UP IMMUNOTHERAPY SHOTS. WE DESPERATELY NEED THOSE. HIS PACKAGE FROM CATHY AT HALDAGO BAY CAME YESTERDAY AND HE IS HAVING A FIT TO KNOW WHAT IS IN THE BOX. "IS IT PRESENTS FOR ME MOMMA?" OF COURSE. HE IS GETTING MORE AND MORE EXCITED ABOUT SANTA COMING. FRIDAY IS HIS LAST DAY OF SCHOOL FOR THE HOLIDAYS.AND DAD HAS 13 DAYS OF VACATION STARTING NEXT FRIDAY. THANKS EVERYONE FOR THE HAPPY MAIL.

Tuesday, December 10, 2002 at 02:26 PM (CST)

HEY EVERYONE. JACKSON WAS DISCHARGED FROM THE HOSPITAL AGAIN TODAY. HE WAS ADMITTED YESTERDAY BY HIS PEDIATRICIAN. THEY KEEP SAYING IT IS A SLIGHT PNEUMONIA, BUT DO TO HIS WEAK RESPIRATORY MUSCLES HE DEVELOPS ATALECTASIS(COLLAPSED LUNG) IM NOT SURE I SPELLED THAT RIGHT. I REALLY HOPE THEY KNOW WHAT THEY ARE DOING ABOUT THIS BECAUSE WE ARE TIRED OF PACKING AND UNPACKING. WE JUST WANT TO BE HOME FOR CHRISTMAS. WE HAVEN'T EVEN PUT A TREE UP. HE HAS 4 MORE DAYS OF IV ANTIBIOTICS AND THEN WE CAN TAKE HIS NEEDLE OUT. THEY SEEM TO THINK ALL OF THIS WAS CAUSED BY A VERY SEVERE ALLERGIC REACTION TO HAY. HE WANTS TO KNOW HOW HE CAN BE A COWBOY IF THE DOCS TELL HIM TO STAY AWAY FROM THE HAY!! TAKE CARE EVERYONE AND THANKS FOR KEEPING US IN YOUR PARAYERS.

Sunday, December 08, 2002 at 10:24 AM (CST)

HELLO EVERYBODY.HOPE YOU ALL HAVE HAD A GOOD WEEKEND. WE ARE STILL HOLDING OUR OWN AND STAYING AWAY FROM THE HOSPITAL. JACKSON IS STILL DOING ALOT OF COUGHING, BUT I STARTED GIVING HIM A DECONGESTANT ALONG WITH HIS IV ANTIBIOTIC SO HOPEFULLY HE WILL GET WELL SOON. TOMMORROW WILL BE A WEEK THAT HE HAS BEEN SICK. HE STILL HAS ALL OF HIS ENERGY(PROBABLY WHATS KEEPING HIM FROM GOING BACK INTO THE HOSPITAL). SO HE IS DEFINITELY USING THOSE LUNGS. CHARLIE BROWNS CHRISTMAS COMES ON TV TONIGHT, SO HE IS VERY EXCITED ABOUT THAT. DAD IS BRINING HOME A TREE TODAY. OTHER THAN THAT, NOTHING ELSE GOING ON. HOPE YOU ALL HAVE A GOOD WEEK.

Friday, December 06, 2002 at 05:59 PM (CST)

HEY EVERYONE. HAPPY WEEKEND. JACKSON IS STILL HOLDING HIS OWN AS FAR AS THE PNEUMONIA IS CONCERNED. HE IS STILL RUNNING A TEMP, AND COUGHING ALOT BECAUSE OF ALL THE CONGESTION. BUT AT LEAST WE ARE AT HOME AND HOPEFULLY WE WILL NOT HAVE TO GO BACK IN. IT ALWAYS TAKES HIM A LONG TIME TO GET OVER ANY KIND OF ILLNESS. BIG OR SMALL. JUST AS LONG AS HE DOESN'T START HAVING RESPIRATORY PROBLEMS ANY WORSE THAN NOW, I WILL BE OKAY. THANKS TO EVERYONE WHO HAS BEEN SENDING HIM CHRISTMAS CARDS. HE GETS VERY EXCITED ABOUT GETTING MAIL.

Thursday, December 05, 2002 at 05:52 PM (CST)

HELLO EVERYONE. AS YOU KNOW JACKSON WAS ADMITTED INTO THE HOSPITAL YESTERDAY WITH PNEUMONIA AND A MAJOR SINUS INFECTION. THEY DISCHARGED HIM TODAY BECAUSE THEY WERE SO AFRAID HE WOULD GET RSV OR SOMETHING ELSE THAT IS GOING AROUND IN THE HOSPITAL. HE CAME HOME WITH IV ANTIBIOTICS(THANK GOODNESS FOR THAT PORT-A-CATH) SO MOM GETS TO PLAY NURSE FOR THE NEXT 9 DAYS. HE IS STILL RUNNING A TEMP BUT PLEASE CROSS YOUR FINGERS THAT HE WILL GET OVER ALL OF THIS.

Tuesday, December 03, 2002 at 11:43 AM (CST)

HELLO EVERYONE. JACKSON IS STILL SICK. HIS THROAT DOESN'T SEEM TO HURT AS MUCH TODAY, BUT HE HAS SO MUCH CONGESTION. HE COUGHED ALL NIGHT LONG LAST NIGHT. TODAY WE STARTED THE INHALER TREATMENTS AND LOOKS LIKE WE MAY GO ON THE BI-PAP TONIGHT. HE IS BEGGING ME NOT TO AND IT BREAKS MY HEART TO TELL HIM WE HAVE NO CHOICE. I AM STILL PRAYING SO HARD THAT THIS WILL GO AWAY. HE HAS HAD HIS 3RD DOSE OF ANTIBIOTIC THIS MORNING, SO TIME WILL TELL. PLEASE PLEASE KEEP YOUR FINGERS CROSSED FOR HIM. HE HAS SPENT WAY TOO MANY CHRISTMASES IN THE HOSPITAL.

Monday, December 02, 2002 at 04:43 PM (CST)

HELLO EVERYONE. HOPE YOU ALL HAD A GOOD WEEKEND. I GUESS OUR GOOD LUCK HAS FINALLY RAN OUT ON JACKSONS GOOD HEALTH. HE WOKE UP THIS MORNING WITH A SORE THROAT. HE WAS CRYING AND VERY UPSET. A SORE THROAT FOR HIM USUALLY LEADS TO PNEUMONIA. AND HE DOES NOT WANT TO GO TO THE HOSPITAL. WE STARTED HIM ON AN ANTIBIOTIC AND WE CAN ONLY CROSS OUR FINGERS THAT IT WILL HELP. HE HASN'T BEEN RUNNING FEVER YET AND WE ARE TAKING A WAIT AND SEE ON WHETHER HE STARTS ON HIS BI-PAP. SOMETIMES THAT SEEMS TO AGGRIVATE THINGS MORE. ANYWAY, WILL KEEP EVERYONE POSTED ONHOW HE IS DOING.
THANKS.

Friday, November 29, 2002 at 02:12 PM (CST)

HELLO EVERYONE. WE HOPE EVERYBODY HAD A WONDERFUL THANKSGIVING. WE DID. JACKSON ATE HIS GRANDMOTHERS DRESSING AGAIN THIS YEAR. FOR ANYONE THAT KNOWS JACKSONS FEEDING PROBLEMS, THEY KNOW THAT FOR US THIS IS A BIG BIG DEAL. HE ALSO ATE 2 PLATES OF MASHED POTATOES. HE TOLD ME NUMEROUS TIMES YESTERDAY THAT HE WISHES ME A HAPPY THANKSGIVING. HE IS SO SWEET.IT HAS GOTTEN PRETTY COLD HERE IN ALABAMA, SO HE IS STAYING INSIDE A LITTLE MORE. WE RODE HIS HORSE THIS MORNING TO GIVE HIS MUSCLES A WORKOUT. HE LOVES RIDING THAT HORSE. NOW HE IS GEARING UP FOR CHRISTMAS. HE EVEN WATCHED THE GRINCH THIS MORNING. HE IS DOING GREAT HEALTH WISE. HE NEEDS A NEW G- BUTTON. I AM CALLING ABOUT THAT NEXT WEEK.HE HATES THAT PART. HE WENT FOR A WEIGHT CHECK AND HE IS STILL 59 POUNDS. HOORAY! THAT MEANS HE IS NOT LOSING ANY WEIGHT AFTER THEY TOOK HIM OFF THE ENSURE. HOPEFULLY HE WILL MAINTAIN THAT WEIGHT. HE HAD GOTTEN A HALF AN INCH TALLER SINCE OCT. HE IS DEFINITELY GROWING!

Tuesday, November 26, 2002 at 10:35 PM (CST)

HELLO EVERYONE. HAPPY THANKSGIVING. I HOPE THAT EVERYONES WILL BE BLESSED. I HAVE SO MUCH TO BE THANKFUL FOR. JACKSON IS TRULY DOING GREAT RIGHT NOW. HE HAS MET SO MANY PEOPLE THROUGH THE HUGSANDHOPECLUB. IT IS NICE TO TALK TO OTHER PEOPLE FACING SOME OF THE SAME PROBLEMS. AND ALSO THE PEOPLE AT SMILEQUILTS FOR MAKING HIS BEAUTIFUL QUILT. I CRIED THE FIRST TIME I SAW IT. IT IS SO NICE TO KNOW THERE ARE SUCH GENEROUS PEOPLE IN THE WORLD. THANKS EVERYONE WHO HAS SIGNED HIS GUESTBOOK AND EVEN THOSE THAT DIDN'T, BUT STILL CAME TO HIS WEB PAGE. AND THANKYOU EVERYONE WHO SENT HIM A CARD IN MAIL. AND MOST OF ALL WE THANK GOD FOR GIVING JACKSON TO US.

Tuesday, November 19, 2002 at 02:55 PM (CST)

HELLO EVERYONE. WELL JACKSON DIDN'T SCREAM NEARLY AS LOUD AS HE USUALLY DOES ON FRIDAY WHEN WE WENT TO HAVE HIS PORT-A- CATH FLUSHED. WE HAD A PRETTY GOOD WEEKEND AND YESTERDAY HE WENT TO SEE HIS NEW ALLERGY DOCTOR. SHE IS REALLY NICE. SHE CHANGED HIS ALLERGY MEDICINE, PUT HIM ON A NASAL SPRAY EVERYDAY. AND SHE PUT HIM ON A STEROID EVERYDAY TO HELP PREVENT ASTHMA PROBLMS. SHE ALSO WANTS TO DO IMMUNOTHERAPY SHOTS. SHE SAYS WE NEED TO BE MORE AGGRESSIVE IN HIS TREATMENT. THIS WILL ALL DEPEND ON THE RESULTS FROM UAB IN BIRMINGHAM WHEN THEY TESTED HIS IMMUNE SYSTEM. I AM KINDA ANXIOUS TO KNOW THOSE RESULTS. OVERALL OTHER THAN A CHRONIC NASAL PROBLEM, HE IS DOING FINE. THANKS EVERYONE FOR SIGNING HIS BOOK AND THINKING OF HIM.

Thursday, November 14, 2002 at 03:17 PM (CST)

HAPPY THURSDAY EVERYONE. HOPE EVERYONE IS LOOKING FORWARD TO THE WEEKEND. IT IS HARD TO BELIEVE IT IS ALMOST THANKSGIVING. JACKSON IS VERY EXCITED BECAUSE HIS UNCLE BERNIE FROM NEW ORLEANS WILL BE COMING OVER TO ALABAMA FOR THANKSGIVING. JACKSON IS VERY CLOSE TO HIM. HE HAS CALLED HIM UNCLE BUNNY RABBIT SINCE HE WAS VERY SMALL. DON'T HAVE A CLUE WHY. JACKSON HAS BEEN HAVING ALOT OF SINUS PROBLEMS THE LAST COUPLE OF NIGHTS WHEN HE GOES TO SLEEP. HE WILL START COUGHING ALOT. GOOD THING HE GOES TO SEE A NEW ALLERGY DOCTOR ON MONDAY. HOPE THEY CAN HELP. TOMMORROW WE GO SEE HIS NURSE TO HAVE HIS PORT-A-CATH FLUSHED. AND OF COURSE WE KNOW HE ISN'T EXCITED ABOUT THAT PART. ANYWAY HOPE EVERYONE HAS A GOOD WEEKEND AND THANKS FOR SIGNING HIS GUEST BOOK.

Friday, November 08, 2002 at 07:17 PM (CST)

HELLO EVERYONE. HOPE YOU ALL ARE LOOKING FORWARD TO A NICE WEEKEND. JACKSON CONTINUES TO HAVE GOOD HEALTH. THANK THE LORD. I FEEL LIKE I KEEP REPEATING MYSELF OVER AND OVER ON HOW GOOD HE IS DOING. I AM JUST SO THANKFUL. HE HASN'T ACTUALLY BEEN IN THE HOSPITAL SINCE MARCH, ALTHOUGH HE HAS BEEN SICK SEVERAL TIMES SINCE THEN, BUT WE WERE ABLE TO STAY AT HOME AND FIGHT IT. I HOPE HE CONTINUES TO DO SO. I ALWAYS GET TOO COMFORTABLE STAYING AT HOME AND THEN WHEN IT HAPPENS THAT HE DOES GO TO THE HOSPITAL IT JUST ALL FALLS APART. SO MANY OTHER PARENTS OUT THERE UNDERSTAND EXACTLY WHAT I AM TALKING ABOUT. ANYWAY, HE IS DOING VERY GOOD IN SCHOOL. HIS OT CAME TODAY SO HE HAD LOTS OF WRITING TO DO.NOW HE IS TALKING NONSTOP ABOUT SANTA CLAUS COMING. IF HIS LIST GETS ANY LONGER, SANTA WILL HAVE A FIT!!! ANYWAY THANKS EVERYONE FOR THE MAIL AND SIGNING HIS GUESTBOOK.

Tuesday, November 05, 2002 at 11:19 PM (CST)

HELLO EVERYONE. TODAY JACKSON WENT TO SEE HIS GASTRO-INTERNIST. HE SAID THE PRILOSEC IS DOING GOOD ON HIM AND GAVE HIM A REFILL.WE GO BACK IN 6 MONTHS. HE ALSO GAVE HIM SOME CREAM TO GO AROUND HIS G-BUTTON. IT IS STILL PRETTY RED. I THINK IT MAY BE GETTING TIME TO SEE DR.POWELL, HIS SURGEON TO GET A NEW BUTTON. THAT IS NEVER A FUN THING TO GO THROUGH. TOMMORROW HIS TEACHER COMES. WE HAVE BEEN USING A KITCHEN TIMER DURING HIS SCHOOL WORK TO SEE IF HE CAN WRITE A LITTLE FASTER AND GET HIS WORK DONE. HE DID SO GOOD MONDAY THAT THE TEACHER GAVE HIM A "NO HOMEWORK" PASS. BOY WAS HE HAPPY ABOUT THAT. I DON'T THINK HE WILL EVER WRITE VERY FAST OR FOR A LONG PERIOD OF TIME BECAUSE OF THE WEAKNESS IN HIS HANDS, BUT IT WON'T BE FOR LACK OF TRYING. THATS MY BOY. AND ONCE AGAIN, THANKS FOR THE HAPPY MAIL.
HUGS, KRISTAL

Saturday, November 02, 2002 at 11:42 AM (CST)

HELLO EVERYONE. HAPPY SATURDAY. NOT MUCH TO WRITE ABOUT. JACKSON'S TEACHER CAME YESTERDAY AND WE HAD HIS HALLOWEEN PARTY. HE HAD POTATO CHIPS, FRENCH ONION DIP AND DR.PEPPER. THATS HIS MOST FAVORITE DRINK IN THE WORLD. I HOPE ONE DAY HE WILL BE ABLE TO EAT MORE SO THAT WE CAN GET RID OF THAT G-TUBE BUTTON. IT IS KINDA RED AND IRRITATED RIGHT NOW. HE STILL HAS THE RASH A LITTLE BIT. THE DOC GAVE ME A SCRIPT FOR IT (ANTIOBIOTIC) BUT TOLD ME TO HOLD OFF ON IT TO SEE IF IT WOULD GO AWAY. MAYBE IT WILL. HE IS STILL RIDING HIS BIKE AS MUCH AS HE CAN AND PLAYING DEER HUNTER ON THE COMPUTER. HE DREAMS OF GOING DEER HUNTING ONE DAY. WE WENT SHINING LIGHTS BEHIND OUR HOUSE ON HALLOWEEN NIGHT AND SAW LOTS AND LOTS OF DEER. HE DOESN'T WANT TO SHOOT THEM JUST SEE THEM UP CLOSE. WELL THANKS EVERYONE FOR SENDING HIM MAIL AND PLEASE SIGN THE GUESTBOOK.

Tuesday, October 29, 2002 at 10:38 PM (CST)

HELLO EVERYONE. HOPE EVERYBODY IS HAVING AN OKAY WEEK. TODAY I TOOK JACKSON TO GET HIS FLU SHOT. AND OF COURSE HE SCREAMED LIKE ALL GET OUT. HE HATES IT EVERY YEAR BUT IT IS SO VERY IMPORTANT FOR HIM TO GET. THE DOC SAYS SHE DOES NOT UNDERSTAND THIS RASH THAT HE KEEPS GETTING. SHE GAVE ME A SCRIPT FOR AN ANTIBIOTIC BUT WANTED ME TO HOLD OFF UNTIL IT GOT WORSE. HE IS GETTING EXCITED ABOUT HALLOWEEN EVEN THOUGH HE IS ONLY GOING IN THE NEIGHBORHOOD AROUND PEOPLE THAT I KNOW ARE NOT SICK. I CANT BELIEVE HOW WELL HE IS DOING RGHT NOW. LAST YEAR THIS TIME HE WAS IN THE HOSPITAL. I THINK HE HAS BEEN IN THE HOSPITAL ON EVERY HOLIDAY AT SOME POINT IN TIME. I THINK THE WORSE WAS SPENDING 2 YEARS IN A ROW DURING CHRISTMAS TIME. THANKS TO ALLFOR SENDING HIM HAPPY MAIL.

Friday, October 25, 2002 at 11:24 PM (CDT)

HELLO EVERYONE. WELL IT IS FINALLY FRIDAY. WE JUST CAME BACK FROM TAKING JACKSON ON A HAUNTED CORN MAZE AND HAY RIDE. IF IT'S SOMETHING TAKING PLACE OUTDOORS HIS DOCTOR SAYS HE CAN GO ONCE IN A WHILE. HE WOULDN'T BE CLOSED UP FOR GERMS TO BE AS BAD. HE HADSO MUCH FUN. WE CARRIED HIM MOST OF THE TIME(ABOUT 3 HOURS WOW!) HIS LEGS WERE HURTING SO BAD. HE DIDN'T GET SCARED AT ANY OF THE THINGS THAT JUMPED OUT AT HIM. ANYWAY, HIS DOC CALLED TODAY AND HE GOES TUESDAY TO GET HIS FLU SHOT. AND HIS FOLLICULITIS RASH HAS COME BACK AGAIN. I DON'T KNOW WHATS UP WITH THAT. IT JUST WON'T GO AWAY. THANKS EVERYONE FOR SENDING HIM MAIL. AND IF YOU STOP BY, TRY TO SIGN THE GUETBOOK. HAVE A GOOD WEEKEND.

Tuesday, October 22, 2002 at 07:06 AM (CDT)

HELLO EVERYONE. JACKSON IS STILL DOING FINE. HE FINALLY GOT HIS HORSE YESTERDAY FROM PERSONAL PONIES. HE WAS SO EXCITED. NOW MAYBE WE CAN WORK ON THOSE TIGHT MUSCLES SOME.IT SEEMS THAT THERAPISTS DON'T WANT TO SPEND TOO MUCH TIME ON HIM BECAUSE HE ISN'T AS SEVERE AS SOME KIDS. HE IS SEVERE ENOUGH TO ME. I WOULD LIKE TO SEE HIM BE ABLE TO WALK A LITTLE BETTER. GUESS IT IS UP TO ME TO SEE TO THAT.
I HOPE HIS GOOD LUCK CONTINUES ON NOT BEING SICK. I HATE IT WHEN HE GETS PNEUMONIA AND CAN'T BREATHE. HE IS STILL RIDING HIS BIKE EVERYDAY AND NOW WANTS SANTA TO BRING HIM A NEW ONE FOR CHRISTMAS. THANKS EVERYONE FOR SENDING HIM MAIL. HE LOVES IT.

Friday, October 18, 2002 at 10:25 PM (CDT)

HELLO EVERYONE. THE WEEKEND IS HERE FINALLY. JACKSON IS DOING FINE, HE FINALLY FINISHED UP HIS ANTIBIOTIC TODAY. I DIDN'T REALLY MENTION IT, BUT HE HAS HAD INFECTED HAIR FOLLICLES. STRANGE, HUH? THIS IS THE SECOND TIME IN 2 MONTHS. DOC DOESN'T REALLY KNOW WHY. BUT THAT IS REALLY NOTHING COMPARED TO WHAT HE HAS HAD BEFORE. IT FINALLY STARTED TO COOL OFF HERE IN ALABAMA, SO HE HAS BEEN ABLE TO GO OUTSIDE MORE WITHOUT HIS RESPIRATORY SYSTEM BEING BOTHERED. HOORAY!!!!! HE IS LOOKING FORWARD TO SPENDING TIME WITH DADDY THIS WEEKEND. I THINK HE GETS KINDA TIRED OF NOTHING BUT GIRLS, GIRLS, GIRLS. HE IS SUPPOSED TO BE GETTING HIS HORSE ON MONDAY SO WE WILL BE ABLE TO WORK ON THOSE MUSCLES. THANK YOU FOR ALL OF THE MAIL YOUR SENDING HIM.

Tuesday, October 15, 2002 at 10:56 PM (CDT)

WELL TODAY WE WENT TO SEE HIS NURSE AND HAD HIS PORT-A-CATH FLUSHED.I PUT EMLA CREAM ON 45 MINUTES BEFORE IT WAS DONE AND HE STILL SCREAMED. I GUESS ONE DAY HE MAY GET USE TO IT. HE HAS HAD PLENTY OF TIME TO ALREADY. GOOD THING HIS NURSES LOVE HIM SO MUCH. HE'S BEEN WAITING ON ME TO FINISH MY WORK ON THE COMPUTER AND HE WAS READING A BOOK THAT SOMEONE SENT HIM IN MAIL, AND NOW HE HAS PASSED OUT. GUESS HE GOT TIRED OF WAITING ON MOMMA. HOPEFULLY HE WILL CONTINUE TO STAY HEALTHY. I DREAD THE WINTER BECAUSE OF THE SICKNESSES. HIS DOC CALLED AND SAID THE FLU SHOTS SHOULD BE IN NEXT WEEK, AND OF COURSE HE IS AT THE TOP OF THE LIST.
THANKS TO EVERYONE SENDING MAIL... IT TAKES SO LITTLE TO MAKE HIM HAPPY.

Sunday, October 13, 2002 at 10:49 PM (CDT)

TODAY JACKSON GOT TO GO DOWN TO HIS GRANDMOTHER'S AND VISIT WITH HIS COUSINS FOR A WHILE. I ACTUALLY LET HIM GO WITHOUT ME.(THAT NEVER HAPPENS) HE RODE THAT BIKE ALL AFTERNOON, AND NOW HE CAN'T WALK TOO GOOD. I FEEL SO SORRY FOR HIM WHEN I WATCH HIM PLAY WITH HIS COUSINS BECAUSE HE TRIES SO HARD TO DO EVERYTHING THAT THEY DO AND TO KEEP UP WITH THEM AND HE ISN'T ABLE TO. SOMETIMES THEY WILL LEAVE HIM BEHIND, WHICH MAKES ME REAL ANGRY. I KNOW THAT I CAN'T PROTECT HIM ALWAYS BUT I CAN'T STAND TO SEE CHILDREN MADE FUN OF. AND JACKSON IS GETTING AT THE AGE WHERE HE NOTICES PEOPLE STARING AT THE WAY HE WALKS. SOMETIMES HE GETS ANGRY FOR NOT BEING LIKE ALL OF THE OTHER KIDS, BUT I JUST TELL HIM THAT SOME KIDS ARE SPECIAL IN DIFFERENT WAYS. I DOUBT HE REALLY UNDERSTANDS. TUESDAY HE IS GOING TO HAVE HIS PORT-A-CATH FLUSHED AND WE ALL KNOW HOW FUN THAT IS...NOT
EVEN THOUGH I DEADEN THE AREA WITH EMLA CREAM HE SWEARS HE CAN STILL FEEL IT. ANY SUGGESTIONS FROM ANYONE?
THANKYOU FOR EVERYONE SIGNING HIS GUESTBOOK AND SENDING HIM MAIL.

Thursday, October 10, 2002 at 10:22 PM (CDT)

JACKSON WENT TO ORTHOPEDIC CLINIC ON WEDNESDAY. HE IS SUPPOSE TO HAVE A SPINAL X-RAY BEFORE HE GOES BACK IN DECEMBER TO CHECK ON HIS SCOLIOSIS. THE DOCTOR SAYS IT'S NOT BAD AT ALL, BUT THE WAY HE DRAGS HIS RIGHT LEG SOMETIMES I DON'T KNOW IF I AGREE WITH HIM. ANYWAY, I DON'T THINK THEY WILL BE DOING ANY SURGERY ON TONSILS AND ADENOIDS. THEY SAY THE RISK TO HIM BECAUSE OF HIS WEAK RESPIRATORY MUSCLES OUTWEIGHS ANY BENEFIT HE WOULD HAVE FROM REMOVING THEM.
SO I GUESS WE WILL KEEP FIGHTING SORE THROATS AND SINUSITIS
UNLESS THE IMMUNOLOGIST FINDS SOMETHING OUT THAT WE DON'T KNOW ABOUT. OF COURSE HE IS GLAD TO NOT HAVE ANY SURGERY. AND THEY SAID HIS SLEEP APNEA IS NOT BAD ENOUGH TO WEAR HIS BI-PAP EVERY NIGHT. SO FOR NOW IT IS STILL ONLY WHEN HE IS SICK. I DON'T KNOW IF HE COULD'VE HANDLED WEARING IT EVERY SINGLE NIGHT. THANKS AGAIN TO EVERYONE SAYING HELLO TO HIM.

Monday, October 07, 2002 at 10:35 PM (CDT)

I FOUND OUT TODAY SOME OF THE RESULTS FROM JACKSON'S SLEEP STUDY. IT SEEMS HE DOES HAVE OBSTRUCTIVE SLEEP APNEA.(THE WAY HE SNORES AT NIGHT I KINDA ALREADY KNEW THAT)LOOKS LIKE THEY MAY WANT TO TAKE THE TONSILS OUT. HE SAW HIS ENT DOC TODAY AND DID AN X-RAY OF HIS ADENOIDS AND THEY ARE TOO BIG TOO. I THINK THEY WILL COME OUT TOO. HE SEES HIS PEDIATRICIAN TOMMORROW, SO HOPEFULLY I WILL FIND OUT MORE. I DON'T LIKE FOR JACKSON TO BE PUT TO SLEEP AT ALL BECAUSE OF HIS WEAK MUSCLES, AND NOW I AM ALREADY WORRYING. I GUESS IF IT HAS TO BE DONE THEN IT HAS TO BE DONE. THE LAST SURGERY WAS A PORT-A-CATH PLACEMENT AND NISSANFUNDALPLACATION. AND THAT WAS 3 YEARS AGO. SO EVERYONE SAY A LITTLE PRAYER FOR US. WILL UPDATE AFTER I FIND OUT MORE. P.S..... HE IS STILL RIDING THAT BIKE ALL OVER THE PLACE.

Monday, September 30, 2002 at 07:34 PM (CDT)

YESTERDAY JACKSON FINALLY LEARNED HOW TO RIDE A BICYCLE.
I NEVER DREAMED HE WOULD BE ABLE TO. HE HAS PROVED SO MANY PEOPLE WRONG ABOUT WHAT HE CAN AND CANNOT DO. THATS MY LITTLE MAN. AND OF COURSE I HAD TO SHED A FEW TEARS.I ALWAYS THOUGHT HIS LEGS WOULDN'T BE STRONG ENOUGH. GUESS HE PROVED MOMMA WRONG TOO!!!!! OF COURSE HIS LEGS HAVE BEEN HURTING A LITTLE TODAY, BUT NOTHING HE CAN'T HANDLE. STILL DON'T KNOW ANYTHING ABOUT THE RESULTS OF HIS SLEEP STUDY. HOPEFULLY SOON. THANKS TO EVERYONE SENDING E-MAILS,CARDS AND FOR JUST SIGNING HIS GUESTBOOK. HE LOOKS FORWARD TO IT.

Friday, September 27, 2002 at 10:34 PM (CDT)

we left yesterday going up to the university at birmingham hospital for jacksons sleep study. he had so many wires attatched to him that he didn't get a whole lot of sleep.( and they say they want it to be as normal to home as possible) don't think it was. they had to get blood also to test his immune system and make sure his pneumo vaccination was working. he screamed and squirmed so much that it took 3 times to get any blood. poor baby. i sure hope all the people that work in these labs understand that some of these children get stuck with needles so much thay can't help getting upset.

Monday, September 23, 2002 at 11:46 PM (CDT)

THANKS TO ALL OF THE PEOPLE SIGNING OUR GUESTBOOK, ONLY OTHER PARENTS SUCH AS OURSELVES CAN UNDERSTAND THE HEARTACHE AND FRUSTRATION THAT WE DEAL WITH ON A DAILY BASIS. SOMETIMES I WORRY SO MUCH THAT JACKSON'S DADDY SWEARS I WILL GET AN ULCER. JACKSON SEEMS SO HEALTHY AT TIMES THAT YOU WOULDN'T KNOW HE HAD HEALTH PROBLEMS UNTIL HE STARTED WALKING WITH THAT SPECIAL LITTLE GAIT THAT HE HAS. OR UNTIL YOU HEAR HIM GET OUT OF BREATH EASILY. WE LOVE OUR LITTLE BOY VERY MUCH AND WE THANK GOD EVERYDAY THAT WE HAVE HIM. WE PRAY FOR ALL THE OTHER PARENTS TOO, THAT THEY MAY MAKE IT THROUGH WHATEVER OBSTACLES THATS PUT IN FRONT OF THEM.

Saturday, September 21, 2002 at 05:16 PM (CDT)

TODAY HAS BEEN JUST LIKE YESTERDAY; HOT AND HUMID. JACKSON WENT OUTSIDE FOR ABOUT 30 MINUTES THIS MORNING TO WATCH DADDY AND PAW PAW WORK ON THE BARN. HE CAME BACK INSIDE OUT OF BREATH SAYING "IT'S TOO HOT OUTSIDE MOMMA". HE HAS SPENT MOST OF TODAY WATCHING CARTOONS OR PLAYING MONSTER TRUCK MADNESS ON THE PC. HIS SISTER WENT OFF WITH FRIENDS, SO NOW HE IS LONELY. I TOLD HIM WE WOULD FIND A REAL SCARY MOVIE TO WATCH ON TV TONIGHT. HE LOVES THE HALLOWEEN MOVIES WITH MICHAEL MYERS. WE WENT TO NEURO CLINIC YESTERDAY. DR.MAERTENS DID INCREASE HIS VALIUM AT NIGHT TIME. HOPING THIS WILL HELP HIS STIFFNESS IN HIS HIPS AND KNEES. HIS SCOLIOSIS WILL BE CHECKED AGAIN IN OCTOBER SOMETIME. AT TIMES HE CAN HARDLY WALK BECAUSE OF THE TIGHTNESS IN HIS LITTLE MUSCLES. HIS NUTRITIONIST CUT BACK ON HIS FORMULA HE GETS THROUGH HIS G-TUBE. HE HAS GAINED ALL THE WEIGHT THEY WANT HIM TOO. THANKS TO ALL THE PEOPLE SIGHNING HIS GUESTBOOKS AND SENDING HIM E-MAIL. IT MAKES HIM FEEL VERY SPECIAL. GOD BLESS.

Thursday, September 19, 2002 at 01:06 PM (CDT)

TODAY HAS BEEN ANOTHER HOT DAY. ME AND JACKSON ARE GETTING SO TIRED OF HAVING TO STAY INDOORS BECAUSE OF THE HEAT. BUT POOR GUY JUST CAN'T BREATHE GOOD WHEN IT IS HOT AND HUMID. HIS DOG ISABELLE PASSED AWAY 2 DAYS AGO AND HE IS VERY SAD. TOMMORROW IS ANOTHER 6 MONTH VISIT WITH CHILDRENS REHAB. TIME TO SEE DR.MAERTENS AGAIN. I THINK HE NEEDS TO INCREASE THE DOSE OF VALIUM SINCE HE STARTED TO PUT ON SOME WEIGHT NOW. HES COMPLAINED ALOT LATELY ABOUT HIS KNEES AND LEGS HURTING. MOTRIN DOESNT ALWAYS HELP. AND HIS SISTER BRANDY IS STILL HAVING BAD HEADACHES. SHE GOES TO THE DOCTOR ON WEDNESDAY TO SEE ABOUT THAT.

Tuesday, September 03, 2002 at 03:41 PM (CDT)

TODAY WE WENT TO SEE DR.RICH, YOUR EYE DOCTOR. IT WAS AWFUL WHEN YOUR EYES GOT DILATED. YOU GOT A VERY BAD HEADACHE AND COULDN'T STOP RUBBING YOUR EYES. ONCE AGAIN HE GAVE YOU BIFOCALS TO WEAR. CAN'T WAIT TO PICK THEM UP. YOU LOOK JUST LIKE DADDY WITH THEM ON. CHRISTINE, THE PHYSICAL THEARAPIST CAME TODAY. YOU WENT FOR A LONG WALK WHICH WORE YOU OUT, AND OF COURSE YOU HAD TO LET HER PET THE HORSES. CAN'T WAIT FOR YOU TO GET THE NEW HORSE. IT WILL BE SO GOOD FOR YOUR MUSCLES.

Friday, August 30, 2002 at 11:24 PM (CDT)

TODAY HAS BEEN ANOTHER LONG DAY. WE ARE ALL STILL RECOVERING FROM THE LONG RIDE UP TO UAB HOSPITAL IN BIRMINGHAM. JACKSON DID FINE ON HIS PULMONARY FUNCTION TESTS. HE GOT OUT OF BREATH OF COURSE. HE REALLY PITCHED A FIT WHEN THEY DID THE NASAL BRUSHING. HIS NOSE AND THROAT WERE NUMB FOR A LITTLE WHILE. THEN WE SAW DR.ATKINSON IN IMMUNOLOGY AND HAD BLOOD WORK TO TEST HIS IMMUNE SYSTEM. HE DIDNT LIKE THAT EITHER. THE FINAL STRAW FOR HIM WAS WHEN DR.ATKINSON TOLD HIM HE HAD TO GET A PNEUMONIA SHOT! POOR LITTLE MAN WAS TIRED FROM GETTING UP AT 4AM AND RIDING 4 HOURS AND THEN ALL THAT POKING. HE SLEPT ALITTLE ON THE WAY BACK HOME. DAD DID TOO! AT LEAST WE DONT HAVE TO GO BACK UP THERE UNTIL SEPTEMBER 26 FOR THE SLEEP STUDY AND MORE BLOOD WORK.

Monday, August 26, 2002 at 02:32 PM (CDT)

HEY JACKSON. TODAY WAS ANOTHER SCHOOL DAY AND YOU DID GREAT. YOU STILL STRUGGLE ALOT WITH MATH, BUT ONE DAY YOU WILL UNDERSTAND IT. WE HAD A LONELY WEEKEND OTHER THAN GOING TO MAW MAW'S OF COURSE. THAT IS ABOUT THE ONLY PLACE WE CAN GO. YOU DID ENJOY RIDING ON DADDY'S TRACTOR LAST NIGHT. YOUR SINUSES ARE STILL GIVING YOU PROBLEMS, SO TOMMORROW WE HAVE AN APPOINTMENT WITH A NEW ENT DOCTOR. HOPEFULLY HE CAN HELP YOU. WE ARE STILL TRYING TO STAY WELL FOR THAT TRIP ON THURSDAY TO UNIVERSITY AT BIRMINGHAM HOSPITAL. LOTS OF LOVE, MOMMA

Friday, August 23, 2002 at 02:20 PM (CDT)

HELLO LITTLE MAN. TODAY WAS YOUR 3RD DAY OF SCHOOL. YOU DID VERY GOOD FOR MISS SONIA. SHE AND I ARE SO PROUD OF HOW MATURE YOU HAVE BECOME OVER THE SUMMER. AND WE ARE ALL JUST PRAYING THAT YOU WON'T BECOME SICK BEFORE OUR BIG TRIP NEXT THURSDAY TO THE UNIVERSITY AT BIRMINGHAM HOSPITAL. I KNOW THAT YOU ARE DREADING THE OVERNIGHT VISIT, BUT I ALSO KNOW YOU WILL BE VERY BIG ABOUT IT. I WAS ALSO VERY PROUD OF YOU LAST NIGHT FOR EATING THOSE TACOS. I HOPE THAT ONE DAY WE CAN TAKE THAT G-TUBE OUT. LOTS OF LOVE, MOMMA.

Thursday, August 22, 2002 at 10:15 PM (CDT)

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