Welcome to Cameron's angel page. It has been created to provide information and support to families (and their friends) who have or know a child with Hurler Syndrome, the rare and usually fatal genetic disorder that took Cameron's life. He was diagnosed at 1 year of age and went to be an angel just 5 weeks before his 2nd birthday, on BMT day +16 in Ft. Worth, Texas, a long way from our home in Alabama!

~~~~~~~~~~~~~~~~~~~~~

You’ll never know the impact of
Your love and what it meant.
You’ll never know the lives you touched;
Your soul was Heaven sent.

Your smile could warm the coldest heart,
Your kiss was good as gold.
Your touch could spark the dullest day,
There’s so much left untold.

We know that you were special and
We know that we were blessed.
We trust in what they always say…
God only takes the best.

~~~~~~~~~~~~~~~~~~~~~

For more details and lots of wonderful pictures before and during Cameron's bone marrow transplant in August 2001, please visit CAMERON'S ORIGINAL WEBSITE.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Also, please visit CAMERON ON CROSSWALK.COM where his story was shared along with Loren's and Dylan's.

Journal

Tuesday, August 16, 2011 11:00 PM CDT

Ten years ago this week, everyone thought Cameron was turning a corner. His blood counts were up, his GVHD was improving, and he seemed to be on the mend. Little did we know that two days later, our worst fears would be realized.

As the days have come and gone leading up to the 10-year anniversary of his death, Cameron has been constantly on my mind. He is in my heart, in the breeze, in the songs I hear on the radio. He is with me every second.

There are no words for the overwhelming emotions that have swept through me lately. I have a great desire to remember my son... every sound, every smell, every smile. As time goes by, my greatest wish is that I keep all these things close. I never want to forget.

Links:

E-mail Author: esmw72@yahoo.com

---

 

Your gift will help millions of people stay connected with friends and loved ones during challenging times.

---

 

This page has been viewed 12956 times.

Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.