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Cameron Bryant Winn
September 27, 1999
August 18, 2001

Welcome to Cameron's angel page. It has been created to provide information and support to families (and their friends) who have or know a child with Hurler Syndrome, the rare and usually fatal genetic disorder that took Cameron's life. He was diagnosed at 1 year of age and went to be an angel just 5 weeks before his 2nd birthday, on BMT day +16 in Ft. Worth, Texas, a long way from our home in Alabama!

~~~~~~~~~~~~~~~~~~~~~

You’ll never know the impact of
Your love and what it meant.
You’ll never know the lives you touched;
Your soul was Heaven sent.

Your smile could warm the coldest heart,
Your kiss was good as gold.
Your touch could spark the dullest day,
There’s so much left untold.

We know that you were special and
We know that we were blessed.
We trust in what they always say…
God only takes the best.


~~~~~~~~~~~~~~~~~~~~~

For more details and lots of wonderful pictures before and during Cameron's bone marrow transplant in August 2001, please visit CAMERON'S ORIGINAL WEBSITE.


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Also, please visit CAMERON ON CROSSWALK.COM where his story was shared along with Loren's and Dylan's.



Journal

Sunday, February 24, 2008 11:01 AM CST

Today is a sad day, and the kind of day that I know all too well. Today is the day another family in our community has to bury their young son whose life ended too soon. Bradey Munroe, an 18-year old senior at Allyson's school, died this week from cancer (ironically, in Texas, just like Cameron). That was one of the first things Allyson said to me when she got the news about Bradey... that he was in Texas when he died, just like her little brother. Her heart is so tender and compassionate, because of Cameron.

We went to Bradey's visitation last night and walked into a 2-1/2 hour line filled with people whose hearts were broken for this family. The turnout was an indication of the kind of person Bradey must have been; although we didn't know Bradey personally, we know his family and have lived in the same community all our lives. When I made it to the front of the church, Bradey's mom said to me, "you know what this is like." The unfortunate truth is that I DO know what it's like, and I had a realization at that moment that I sometimes forget. Going through what I did with Cameron prepared me for something that not everyone can do for people... show them that life can go on without your child. In that one moment with Bradey's mom, I knew that Cameron's death would once again make an impact on someone else because this mom looked at me in that one moment and knew that if I could survive losing a child, that she could and would survive it, too.

That is what it's all about... going through something that changes you forever and still finding a way to share that with someone else. Please keep this family in your prayers. Most of you who read this journal have first-hand knowledge of the kind of thing I am talking about. This time around it's about someone else, someone new, but we can love them and pray for them, just like people did for us... and just like us, they will get through it.

Love and peace...

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Hospital Information:

Patient Room: HEAVEN

Mom and sister, at home in AL...
2629 Choccolocco Road #4-C
Anniston, AL 36207
(256) 403-2199

Links:

http://www.geocities.com/esmw72   Cameron's website that was created before and during his bone marrow transplant for Hurler Syndrome in 2001.
http://www.heavenlylights.homestead.com   A wonderful memorial site for children gone too soon... thank you, Laura! (Cameron's star is on page 10, Alexis Wiggins' star is on page 9.)
http://www.mspsociety.org/index.html   The official MPS Society website. Visit here for more detailed information about MPS disorders.


 
 

E-mail Author: esmw72@yahoo.com

 
 

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Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.
 
 
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