11 years old

WELCOME TO RYANS WEB PAGE.

Ryan was diagnosed in 2002 with a rare genetic disorder called Fanconi Anemia (FA) he is expected to develop aplastic anemia which means that the bone marrow will stop producing red and white blood cells as well as platelets, the only cure for the anemia is a bone marrow transplant which we are very fortunate that my youngest son Tyler is a 5/6 match.
FA paitents face a long battle to get through this horrible disorder and if successful they then face high chances of secondary cancers.
Some FA children have birth defects and some don't. Ryan was born with no thumbs and has since had 2 major surgeries where they use the index finger to make thumbs this is an amazing piece of surgery, he is also shorter than most kids his age and is having growth hormone at the moment to see if it makes a difference we have seen good results so far.

This page is to keep family and friends updated with Ryans progress on this long road to recovery.

Journal

Sunday, May 10, 2009 5:23 AM CDT

Watch this space!!!!!!

Ryan has started his growth hormone he had his 4th injection tonight and hes already wanting to measure his height.
Everything else is going well for Ryan hes started learing the electric guitar and loving it.
Well hopefully i can post in the next few months some growth results.

Hospital Information:

Patient Room: ward 27B

Starship Childrens Hospital
Grafton Rd
Auckland, New Zealand
09 3794949

Links:

E-mail Author: janinegodfrey@xtra.co.nz

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Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.